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CONTACT MRKH CONNECT

Recent Posts

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NEW MRKH RESEARCH OPPORTUNUTY....SWIPE----> King’s College London are undertaking a new research study under their Masters in Health Psychology program focusing on experiences of parents, or guardians, of those with MRKH as a way to help develop better ways to support our biggest supporters. This is an opportunity for any parent or guardian of an MRKHer wherever you are in the world 🌏 to take part in some new research. Hear more about the study from the student running it, Emily "We are looking to understand parents' experiences and understanding of MRKH and want to learn more about your experiences of coping, accessing support and communicating about MRKH. All the information that you provide will remain completely anonymous and help us to develop better ways to support people with MRKH and their parents in the future" What will the study involve? You will be asked to fill out a questionnaire, and also complete a 30-45 minute telephone or virtual interview with the research team. Interested? Check the link in bio 👆 to find out more and register your interest before 8th July! If you have questions you can also get in touch with the research team to discuss more: Emily.g.salisbury@kcl.ac.uk Susan.carroll@kcl.ac.uk Please note this is not an MRKH Connect led study but we believe it to be of interest to the community and we have provided suggestions to the team running it (who we already work closely with) and are pleased to share it given the importance of the topic and how it aligns with our own charity goals! 🤍 #haveyourvoiceheard #family #mrkhfriendsandfamily #mrkhresearch #research #mrkh #survey #diagnosis #health #support #mrkhawareness #mrkhwarrior #disclosure #raisingawareness #1in5000 #improvingcare #normalisetheconversation #mrkhsyndrome #mrkheducation #mrkhempowerment #gynaehealth #womanshealth #community #sexualhealth #mentalhealth #mentalhealthawareness #infertility
“We will never grow out of MRKH. We learn to gro “We will never grow out of MRKH. We learn to grow with it” - @ally__hensley As we continue to adjust, adapt and hopefully accept our MRKH diagnosis, our opinions will shift as we do. As we know, MRKH isn’t sadly going anywhere. However, we do have the control over the part it plays in our lives. Some days will be a mess, some will be hopeful, and some will also remind us that MRKH has introduced us to bravery, empathy and a community like no other. The ‘spikes’ of MRKH are so relevant; the first disclosure, the first baby shower, the first chimes of the biological clock! It’s so important to surround yourself with support and compassion when these spikes hit. But. Nothing stays the same. Our thoughts shift, our outlook opens and our hardest days become our greatest teachers. We are for you. Always 💗 #mrkh #mrkhconnectlive #mrkhawareness #mrkhwarrior #warrior #1in5000 #mentalhealth #wellness #wellbeing #connection #community #support #strongertogether #teamwork #infertility #diagnosis #mrkhempowerment #mrkheducation #journey
This week I will.... 🤍 take time for myself 🤍 dedicate time to my friends 🤍 leave work on time It can be hard to set goals for long periods because they can feel so unobtainable. But small achievable goals are small wins that give us a positive boost. Life is busy and time can feel limited. This week we are taking a step back and set some goals for the week ahead 🙌....and importantly try and stick to them! What will you do this week? #mrkh #motivation #selfcare #journal #hope #journey #community #motivation #believeinyourself #support #youarenotalone #mentalhealth #infertility #warrior #mrkhwarrior #mindful #mrkhempowerment #mrkheducation #peersupport #1in5000 #positive #health #mrkhawareness #wellbeing #wellness #strength
We are often hard on ourselves, perhaps even not a We are often hard on ourselves, perhaps even not always very kind to ourselves. We strive for a perfection that is unobtainable because we often set our expectations of ourselves much too high. So today, as a reminder for all, we want you all to know that you are doing the best you can. That your limits may vary day to day and that that is OK. Be gentle with yourself and your feelings always 🤍 #mrkh #yourstory #journey #hope #journey #community #motivation #believeinyourself #support #youarenotalone #mentalhealth #infertility #warrior #mrkhwarrior #mindful #mrkhempowerment #mrkheducation #peersupport #1in5000 #positive #health #mrkhawareness #wellbeing #wellness #strength
Thank you from the bottom of our hearts for the wo Thank you from the bottom of our hearts for the wonderful messages and support from our wonderful participants and sponsors. These important words reaffirm to us why this challenge is so important! This year's event may be nearly over but we look forward to what comes next and importantly doing it all again next year. #mrkh5000in50 #whatsyourwhy #mrkh #mrkhawareness #mentalhealth #wellbeing #wellness #infertility #fitness #mindful #community #strongertogether #strength #teamwork #support #mrkhempowerment #mrkheducation #1in5000
We are ending this year's #mrkh5000in50 exactly as We are ending this year's #mrkh5000in50 exactly as we began with a 5k. Whether you walk, run, cycle, rollerblade, hula hoop or whatever other creative method you can think of to reach 5k (whatever 5k means for you) let's have some fun today to reach that 5k. If you want to share how you get on, tag us and use the hashtag #lastday5k and we will share your posts. Every event participant who do does this will be in with the chance of a prize! As this is the last day we also want to give a MASSIVE thank you to all the participants and all the sponsors for everything you have done to support us over the last 50 days and help us work towards our goal. We have been overwhelmed with the positive messages and how much this challenge means to you personally. This challenge is all about raising awareness for MRKH but more importantly it's about promoting health and wellbeing for yourself as well, and coming together as a community to do something positive. We look forward to seeing what you get up to today as we work to collect all the final submissions and update our Totaliser in the next week. #mrkh #mrkh5000in50 #mrkhawareness #1in5000 #health #fitness #wellbeing #welless #mrkhempowerment #infertility #community #support #selfcare #indful #teamwork #strongertogether #rokitanskysyndrom #mentalhealth
This year's 5000 in 50 challenge has seen us once This year's 5000 in 50 challenge has seen us once again take on the challenge of 5000 hours of activity in just 50 days. Everyone taking part has contributed to this goal whether they have done 10 minutes or 2 hours a day. Thank you! It isn't about how much we do but being more conscious of taking time out for you. We desperately want to reach our goal before the challenge ends in just a few days time. Keep going everyone and let's finish this as a team ❤️ We also want to say a massive thank you to our community supporters, our MRKH and wider community prize partners for joining us, supporting us and working with us again this year and for providing an excellent array of prizes throughout the challenge. ❤️ @mrkhcanada @beautifulyoumrkh @vavawomb @mindovermrkh @sumaavi_trustedcircle @mrkhstars @mrkh.southafrica @guerriereroki @mrkhaustralia @femigami @vadgebadges @notyournanasyarnwork #mrkh5000in50 #mrkh #warrior #MRKHawareness #mrkhwarrior #fitness #wellness #wellbeing #mindful #mentalhealth #mentalhealthawareness #community #support #1in5000 #challenge #journey #teamwork #strongertogether #infertility
Nothing like a pick-me-up quote, spotted on a Lond Nothing like a pick-me-up quote, spotted on a London stroll! You gotta love a mood booster (AKA reminder), that we are still yet to cross paths with all the people who are going to love and support us! That’s the thing about life, we can be damn certain of what we don’t want in our lives, and completely open to what we do. Even on our darkest days, behind the scenes magic is making its next move for us. If there is anything we are sure of, is that we deserve happiness. Sending out these healing vibes to all those who need them 💗 #mrkh #mrkhconnectlive #mrkhawareness #mrkhwarrior #warrior #1in5000 #mentalhealth #wellness #wellbeing #connection #community #support #strongertogether #teamwork #infertility #diagnosis #mrkhempowerment #mrkheducation #journey
We are entering the last few days of #mrkh5000in50 We are entering the last few days of #mrkh5000in50 and we continue to be inspired by everything you are all doing to like and share and importantly do something to focus on your own health and wellbeing! For the final few days we want to challenge everyone to think about Happiness 🙂 We know an MRKH diagnosis can leave us with less than positive feelings and feeling happiness after diagnosis can feel impossible. But we are worthy, deserve happiness and happiness is absolutely possible. MRKH is part of us but it doesn't have to hold us back from our happy. Perhaps happiness is as we always planned, perhaps its where we least expect it, or it might be those things we do that bring us happy every day. What does happiness mean to you? Is happiness an object, an experience, a hobby, a person? If you feel comfortable to share your happy with us then we would be delighted to see what brings happiness to you - perhaps it will also inspire someone else to try something new! If you are participating in the challenge and want to submit something to us then we have prizes to be won for this very special challenge! === What is MRKH? MRKH (Mayer Rokitansky Küster Hauser) syndrome is a condition affecting 1 in 5000 female births leading to the absence (or under development) of the uterus, cervix and shortening of the vagina. It is often identified between the ages of 15-17 when periods don't start and investigation is undertaken as to why. MRKH Connect is a charity founded in 2014 with the mission of bringing those with MRKH together to ensure no one feels alone whilst also working to improve knowledge, care and support. MRKH 5000 in 50 is an international community supported initiative to raise awareness for MRKH whilst promoting physical and mental health and well being. Accessible to everyone, the challenge is to reach 5000 hours of activity in just 50 days! wwww.mrkhconnect.org #mrkh5000in50 #happiness #happy #mrkh #growth #wellbeing #strongertogether #teamwork #mrkheducation #mrkhsyndrome #1in5000 #wellness #health #community #infertility #awareness #rokitanskysyndrome #mentalhealth #warrior #mrkhwarrior
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