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Recent Posts

  • Barriers to Accessing Care: UK MRKH Survey
  • National Infertility Awareness Week (US)
  • Introducing Sumaavi Trusted Circle
  • 5000-IN-50 Challenge starts 5th May 2021
  • Revisit the Vagina Festival in Full!

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It is so wonderful to see a feed full or orange to It is so wonderful to see a feed full or orange today and loads of tags from you all! 🧡 We feel rather silly we couldn't find any orange ourselves but after seeing so wonderful amazing posts we thought it a great opportunity to share what this week means to YOU. If we missed yours give us a nudge we would be happy to share! We spotted this one from a fellow UK MRKH warrior and friend and had to repost! These few words are so powerful and such a good reminder that we are more than our infertility Thank you dear Aysha for this wonderful post and all you are doing to grow your confidence and raise cultural awareness amd impact of MRKH 🧡 #mrkhempowerment #mrkheducation #community #support #sexualhealth #gynaehealth #Repost @mrkhmary (@get_repost) ・・・ 🧡Today I'm wearing orange for infertility orange Wednesday🧡 I was born with MRKH (www.mrkh.org.uk), so I was born without a uterus. Infertility has been the hardest part of the diagnoses for me but it's through this I have gained: international sisterhood, strength, courage, resilience, determination, friendship and a lot more, Alhumdulilah. There's a lot I could say but my main message to you is: 🧡With a baby or without, you are valuable, you are whole and you matter! #NIAW#NIAW202#infertility#mrkh#mrkhsisterhood#endstigma#infertilitywarrior#wewearorange#weare1in8#beautifulyou
Our Italian MRKH friends have a petition to help t Our Italian MRKH friends have a petition to help those that need support through surrogacy to have children. This is not currently available in Italy and something they are fighting hard to change for MRKH and other conditions where access to MAP (described below) would have significant benefit #ivf #surrogacy #ivfsurrogacy #mrkh #mrkhawareness #Repost @guerriereroki (@get_repost) ・・・ Sostienici firmando la petizione per far sì che la PMA (Procreazione Medicalmente Assistita) diventi una possibilità per noi e per altri che come noi non possono avere bambini. Support us by signing the petition to make MAP (Medically Assisted Procreation) becomes a possibility for us and others like us who cannot have children. https://www.associazionelucacoscioni.it/appelli/appello-al-parlamento-per-una-legge-gravidanza-solidale
We are delighted to have teamed up with some great We are delighted to have teamed up with some great MRKH community partners for #mrkh5000in50 who have kindly donated our main prizes and you will hear more about those very soon But that is not all. We have a selection of giveaways during the event too and we couldn't wait to share!   First we want to introduce @notyournanasyarnwork an internationally recognised feminist artist bringing the world uncoventional crochet creations promoting sexual health, body positivity and much more through her inclusive art.   "I’m Crystal. I’m a 28 year old single mom and I have been crocheting for 6 years. I am self taught and everything I do is freehand. My art is a huge part of who I am, and I hope that as my business grows I can make people feel empowered in their bodies and that I can bring awareness to social justice issues, and draw attention to the importance of proper sexual education and sexual wellness" One big part of this event is raising awareness but also promoting wellness and body positivity and our own empowerment.  We thought this work was a great fit after seeing it at the recent @vaginafest   So we have a selection of Crystal's pieces that will be part of our giveaways and prizes including this rather wonderful plush clitoris! Have you signed up yet? Find out more about 5000 in 50 and sign up today by following the link in our bio! #mrkh5000in50 #blog #journaling #raisingawareness #virtualevent #mrkhawareness #1in5000 #rokitanskysyndrome #mrkhsyndrome #mrkhempowerment #mrkheducation #mentalhealthawareness #mentalhealth #selfcare #support #MRKHcommunity #community #diversity #fertility #infertility #fitness #selfcare #selflove #YouAreNotAlone #bodypositivity #sexualhealth #health #womanshealth #teamwork
What activities can you do in the 5000 in 50 chall What activities can you do in the 5000 in 50 challenge? We have a few examples from the team to give you some ideas...because the exact activities you do during the challenge are up to you. Next up... 🤸‍♀️🤸‍♂️A E R O B I C S🤸‍♂️🤸‍♀️ Whether you do it at home or in a gym, aerobic exercise can be many and varied and a great way to stay in shape. === Activities range from physical fitness to mental health and wellbeing to not only make it accessible to all but to provide us all a personal challenge and we will have many events to 'join in' to help with any additional motivation needed. This event is open to everyone, wherever you are in the world so grab your friends, family and colleagues as we embark on something new and exciting for our community! With lots of fun to have along the way! Follow the link in our bio to find out more and sign up today! #mrkh5000in50 #blog #journaling #raisingawareness #virtualevent #mrkhawareness #1in5000 #rokitanskysyndrome #mrkhsyndrome #mrkhempowerment #mrkheducation #mentalhealthawareness #mentalhealth #selfcare #support #MRKHcommunity #community #diversity #fertility #infertility #fitness #selfcare #selflove #YouAreNotAlone #sexualhealth #health #womanshealth #teamwork
New UK MRKH survey has launched! We are delighte New UK MRKH survey has launched! We are delighted to team up with Ruveyda Aki a Health Psychology MSc student from King's College London to research the topic of Barriers of Accessing Care (peer and professional) in the UK. Ruveyda has been working with us as part of her MSc and was really interested to delve into this topic and understand more about how, from a patient perspective, care could be improved. Given this is such a short placement the focus here is UK only but we hope to work with our community peers to widen the survey in different regions in due course. The survey is open for 1 week and will take approximately 10minutes, is open to all who were diagnosed or who have accessed support services in the UK and is completely anonymous. Follow 'UK MRKH Survey' in our linktr.ee in bio to find our more and complete the survey. #bepartofthechange #change #haveyourvoiceheard #mrkh #survey #mrkhsurvey #diagnosis #health #support #mrkhawareness #mrkhwarrior #disclosure #raisingawareness #1in5000 #improvingcare #normalisetheconversation #mrkhsyndrome #coping #mrkheducation #mrkhempowerment #mrkhlife #gynaehealth #womanshealth #community #sexualhealth #mentalhealth #mentalhealthawareness #fertility #infertility #fertilitymatters
Today kicks off the NIAW 5 day challenge an import Today kicks off the NIAW 5 day challenge an important part of #NIAW for our US friends. But as we know infertility knows no bounds and we are waving our infertility flag too. Check our all the interactive ways to get involved and follow @resolveorg for more on everything #infertilityawareness this week! Tag us too and we would be pleased to share your MRKH stories #whatiwantyoutoknow #bepartofthechange #change #haveyourvoiceheard #mrkh #diagnosis #health #support #mrkhawareness #mrkhwarrior #disclosure #raisingawareness #1in5000 #improvingcare #normalisetheconversation #mrkhsyndrome #coping #mrkheducation #mrkhempowerment #gynaehealth #womanshealth #community #sexualhealth #mentalhealth #mentalhealthawareness #fertility #infertility
What activities can you do in the 5000 in 50 chall What activities can you do in the 5000 in 50 challenge? We have a few examples from the team to give you some ideas...because the exact activities you do during the challenge are up to you. Next up is writing / journaling. Writing can be a super relaxing activity and a great way to put down our sometimes jumbled thoughts or just capture our day to day experiences. Whether you are a public blogger, you write for yourself or have never attempted to write in this way the cathartic release of writing is a great self care activity. === Activities range from physical fitness to mental health and wellbeing to not only make it accessible to all but to provide us all a personal challenge. This event is open to everyone, wherever you are in the world so grab your friends, family and colleagues as we embark on something new and exciting for our community! With lots of fun to have along the way! Follow the link in our bio to find out more and to sign up today! #mrkh5000in50 #blog #journaling #raisingawareness #virtualevent #mrkhawareness #1in5000 #rokitanskysyndrome #mrkhsyndrome #mrkhempowerment #mrkheducation #mentalhealthawareness #mentalhealth #selfcare #support #MRKHcommunity #community #diversity #fertility #infertility #fitness #selfcare #selflove #YouAreNotAlone #sexualhealth #health #womanshealth #teamwork
So what activities can you do in the 5000 in 50 ch So what activities can you do in the 5000 in 50 challenge? Well we wanted to show you a few examples from the team to give you some ideas...because the exact activities you do during the challenge are up to you. First up... 🚶‍♀️🚶‍♂️🚶‍♀️W A L K I N G🚶‍♂️🚶‍♀️🚶‍♂️ whether it is walking the dog in your lunch break to hiking miles across the countryside, walking is a great way to improve our wellbeing day to day and and excellent way to get some physical exercise too! === Activities range from physical fitness to mental health and wellbeing to not only make it accessible to all but to provide us all a personal challenge. This event is open to everyone, wherever you are in the world so grab your friends, family and colleagues as we embark on something new and exciting for our community! With lots of fun to have along the way! Follow the link in our bio to find out more and to sign up today! #mrkh5000in50 #raisingawareness #virtualevent #mrkhawareness #1in5000 #rokitanskysyndrome #mrkhsyndrome #mrkhempowerment #mrkheducation #mentalhealthawareness #mentalhealth #selfcare #support #MRKHcommunity #community #diversity #fertility #infertility #fitness #selfcare #selflove #YouAreNotAlone #sexualhealth #health #womanshealth #teamwork
NIAW is just around the corner and whilst it is th NIAW is just around the corner and whilst it is the US National infertility awareness week our international community means we want to wave our flag to support our members and peer organisations in the US. Thank you @delcomrkhjen who nominated us for #inferilitylookslike So here is how it looks for us 🧡 an MRKH diagnosis 🧡 navigating what this means for us 🧡 knowing that inferility is more than just motherhood   🧡 not being defined by our infertility 🧡 being part of a brave, strong and wide community and a support network like no other 🧡 having the chance to be part of something amazing and strive to make a change for the better for all those with MRKH through MRKH Connect Swipe right for our Director Charlie @charlieabishop with board member Hasna @walkingwithmrkh. We both have MRKH but we don't let it slow us down! This year's theme of #NIAW is empowering us all to change the conversation.  What does this mean? Ever have a conversation with others who don't really understand what infertility is? Does your employer provide support?  is there enough out there about infertility? Changing the conversation helps raise awareness and work towards improving support and care Infertility doesn't just happen in the US, it has no geographic boundaries so we will, like usual, be doing our bit to #changetheconversation this year and help raise awareness for #infertility. Check out all the ways you can get involved at @resolveorg #infertilitywarrior #infertilityawareness #shareyourstory #mrkh #diagnosis #health #mrkhawareness #mrkhwarrior #disclosure #raisingawareness #ivfsurrogacy #coping #selfcare #normalisetheconversation #mrkhsyndrome #coping #mrkheducation #mrkhempowerment #gynaehealth #womanshealth #community #sexualhealth #mentalhealth
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