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MRKH Connect Application Form PageW0nderW0men2020_2025-02-27T22:06:34+00:00

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CONTACT MRKH CONNECT

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Recent Posts

WCPAG: What did we learn?
New Research: Cross cultural perceptions of UTx among the MRKH community and clinicians
Research on Artificial Wombs and MRKH
New Research: Centre of Bioethics and Health Policy
When your body doesn’t match the curriculum

mrkhconnect

MRKH Connect is a charity with a mission to connect those with MRKH all over the world. No one should feel alone, we are 1 in 5000 #mrkhempowerment ❤️

Introducing our next MRKH CONNECT LIVE 2026 speake

Introducing our next MRKH CONNECT LIVE 2026 speaker, Rima Zigaitis.This session will focus on: Coping strategies and counselling. 💜

Rima Zigaitis founded @sumaavicoaching , an MRKH Coaching program, to empower people with MRKH to accept their diagnosis and transform their relationship with MRKH and other life-altering diagnoses.

As a certified professional coach and adult learning specialist, she dedicates her skills to providing mental health support she wishes she had as a young girl diagnosed with MRKH at 16 years old.

Coaching guides people to build tools and life strategies they can apply throughout their whole life. Coaching is offered in individual and group coaching formats for people with MRKH, parents and partners.✨

To register for the event, please head to the link in our bio.👆

#mrkh #mrkhawareness #courage #connectlive2026

🔥 Announcement Incoming 🔥 Introducing our first @

🔥 Announcement Incoming 🔥

Introducing our first @mrkhconnect LIVE 2026 MC, Charlie Bishop, MRKH Connect: Director. This incredible woman leads with compassion, commitment, and an unstoppable desire to raise MRKH awareness both on UK soil and globally. 🌏

Charlie will be our MC for the event and will share all the exciting updates from the last 12 months about the work accomplished by MRKH Connect and the community we serve, including the ‘5000-in-50 Challenge’ donation reveal! 🫶

As a passionate leader in the MRKH world, @this_charlie_can is the advocate’s advocate. She is one very special woman. ✨

Charlie has been part of the MRKH Connect family since 2017 and took over as Director in 2019.
She was diagnosed with MRKH at 17. She is a geoscientist with an analytical brain and works as a project manager interpreting satellite imagery.

Her passion for a number of years has been to help support the community which has helped her, by helping others. She advocates for MRKH, support and improved research and care and started to write a public blog in 2014 which launched her outreach into advocacy more by chance and she hopes her writing, which helped her, has become a useful resource for the public and community also.

We hope to see you there! 💜

To register, head to the link in our bio!

#mrkh #mrkhawareness #courage #connectlive2026

Join us for our next online peer support group Con

Join us for our next online peer support group Connect with Friends on Sunday 21st June 7pm BST (UK time) hosted by the lovely @ally__hensley 💜

These events are designed to be relaxed and informal with the chance to chat and share, or just listen, no pressure, with friends old and new💛

As with all our Connect with Friends this is only for those with MRKH and all MRKHers over 16 are welcome regardless of where you are in your journey.

We hope to see you there 🤍

Follow the link in our bio to events to register.

#connectwithfriends #mrkhawareness #mrkh #hope #mentalhealth #support
#peersupport #infertility #mrkhsyndrome #mrkheducation #mrkhwarrior #mrkhempowerment #health #friendship #community #strongertogether

MRKH is hard. Hard to live with and hard to expla

MRKH is hard.

Hard to live with and hard to explain to others.

That's one big reason why we do our #mrkh5000in50 challenge as a way to raise awareness whilst promote our physical and mental health something because MRKH may not be visible but it's impact is not.

Here's Charlie @this_charlie_can sharing her challenge and why this is important to her 🙌

Our annual challenge with a big goal is to raise awareness, promote wellbeing and raise £5000 in the process.

💜

Considering donating? Follow the link below to find out more 👇
https://www.justgiving.com/campaign/mrkh-5000-in-50-2026

MRKH Connect is a small volunteer run charity with a mission to connect those with MRKH together wherever they are in the world 🌎 and provide support, resources and importantly accurate information.

We rely on donations to help us continue to offer our programs initiatives and events and we thank you for considering us and liking and sharing this post.

Thank you 💜

#mrkh #warrior #strongertogether infertility

🌟 REGISTRATION IS OPEN AND AGENDA IS LIVE🌟 Join

🌟 REGISTRATION IS OPEN AND AGENDA IS LIVE🌟

Join us for this year's Connect LIVE as we return to the big screen on 11th July 2026 in London.

Our annual in person peer support is an event designed to provide information, support and celebrate our MRKH community, our biggest milestones in UK and global advocacy, and most importantly, you.

Like last year the 5000 in 50 challenge fundraiser will also end at Connect LIVE, a wonderful way to celebrate together.

Our agenda is now LIVE and we will be joined by speakers from across our community in the UK and North America sharing their experiences and knowledge as we also explore experiences at different ages and stages of our journey too as we cover everything from diagnosis, to body image, cultural perspectives, to fertility pathways (or not), mental health and more.

We are also absolutely delighted to welcome a special guest speaker Dr Christine Pennesi from the @mrkhcarecincy team joining us live and in person to answer the question...What is MRKH?

Follow the link in our bio to find out more and sign up today and keep following for speaker updates!

Tickets are FREE but if you wish to make a donation all proceeds will go straight back into the work we do supporting the MRKH community.

https://mrkhconnect.co.uk/connect-live-11th-july-2026/

💜

#mrkh #infertility #event #warrior #mrkhwarrior

Always keep going. ✨💜 #mrkh

Always keep going. ✨💜

#mrkh

Here she is, running for us, Charlie Bishop, MRKH

Here she is, running for us, Charlie Bishop, MRKH Connect Director.

OK, so let’s cut to the chase: In the world of charity, there is always something not so easy to hear: We need your help.

Yes, we are here to support and advocate for MRKH. This diagnosis is rare, life-altering, taboo, and unheard of. But here’s the thing: it’s hard to rally for funds when you’re in the shadows of a misunderstood condition.

We know that MRKH (Mayer-Rokitansky-Küster-Hauser) Syndrome is a congenital condition (present at birth) that affects around 1 in 5000 female births. Whilst everyone is different, we have provided a summary of how MRKH usually affects the body and how it is typically diagnosed. Please note that the information is for background purposes and not a replacement for qualified advice about your individual case.

And, honestly, it’s hard to raise funds when the very condition you’re rallying for is so hush-hush. This is why we need your help. We can create the snazziest campaign, line up supporters to run a race, and host morning teas, but the real problem is, we simply need... donations. We’re a volunteer-led charity; website development, strategy administration, social media engagement, and so much more, but it still doesn’t cover the costs. We need money for travel donations, marketing presence, charity status, insurance, indemnity, and even laptops to host youth programs. We don’t run off love alone, even though we wish we did.

We need YOUR help.

Our annual charity fundraiser lasts for 50 days, for 365 days of activity.

If you see someone sweating over a run, boiling the kettle for a coffee morning, or pasting numbers on the back of a marathon t-shirt, know that... WE.NEED.YOUR.HELP.

Give what you can today, you know where to find us. ✨

✨️LAST CALL FOR JUNE PROGRAM ✨️ If you have ever

✨️LAST CALL FOR JUNE PROGRAM ✨️

If you have ever wanted to connect with others and find a path forward, and have been unsure where to start then the MRKH Youth Program might be for you!

A program that may surprise you and a perfect and relaxed way to meet others in a small group setting, online.

This program is...
🤍Peer led and run online.
🤍Small group, relaxed and informal,
🤍Designed to help young MRKHers move towards a better acceptance of MRKH
🤍A way to develop strategies to help process your journey
🤍Focused on wellbeing whilst making new connections in a safe space.

Run by young MRKHers for young MRKHers aged 18-25* 🤍

Our next program will start on 17th June and runs every Wednesday evening for 6 weeks, last chance to secure your spot for this set.

Find out more by following the link below, in our bio or drop us a 💜 below!

https://mrkhconnect.co.uk/youth-program-2026-from-17th-june/

#mrkh #hope #journey #community #support friendship mrkhempowerment mrkheducation peersupport warrior infertility strongertogether

In April, Charlie as Director of MRKH Connect atte

In April, Charlie as Director of MRKH Connect attended WCPAG (World Congress of Pediatric and Adoslecent Gynaecology) an event held approx every 3 years. Charlie shares her reflections from the event --->

This event, designed for medical professionals to come together, was also an opportunity for us as MRKH patient advocates to have a presence and to be be able to not only to connect, chat and learn but also contribute to the discussions.

Very much leaving us all with the feeling that our presence was not just valued but important.

Find the full article under News in our Bio.

💜

Big thanks to fellow advocates at the event Rima (@sumaavicoaching), Ashley (@mrkhcanada) and Adair (@beautifulyoumrkh) a pleasure to meet in person and experience this together.

#mrkh #mrkhawareness #infertility #mrkhempowerment #mrkheducation

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