CONNECT LIVE 2024

‘By sharing we gain strength, support and clarity’

Connect LIVE 2024 was an in-person community led event, featuring speakers sharing MRKH lived experiences, international presentations, and panel discussions in London, UK on 20th July. Inspired by our MRKH Connect with Friends events, this event, our first in person, was an opportunity to come together to connect, learn and laugh in an informative peer led environment.  We are happy to be able to share some of the presentations from this event, please remember these were recorded live and so sound and recording quality varies in some cases.  We can’t wait to do it all again next year.

Speaker Program

Amy is one of the first global advocates to spearhead MRKH support and awareness, and is admired by the global MRKH community. She is the President and co-founder of the Beautiful You MRKH Foundation in the USA and earned a PhD in Human Genetics, channeling this expertise to transform health and well-being for the MRKH Community through partnering with other MRKH organizations, clinicians, and scientists to drive research and improve the health of all who experience MRKH.

Isa is a Swedish MRKH advocate posting content through her MRKH Living page.  Her journey to diagnosis was bumpy taking several years to have a formal diagnosis at age 23.  Since 2002 she has been more open with her journey, challenges and the different ways to healing and happiness.  By sharing her experiences she hopes to continue to help others, and herself.

Gabs is co-creator of Your Pace DSD. She is 23 and hadn’t acknowledged her MRKH fully until she was 20 which was when she started working with dsd families, a charity that helps young people with a difference in sex development. Gabs is an inspirational voice within the DSD community and she shares her experiences of disclosure and intimacy within relationships.

Chloe discovered she had MRKH when she turned 16. Being 20 now she can say she’s definitely learnt more about this condition and found out a lot about herself along the way. All her life she’s loved being there for others and helping in any way she can to make a difference to those around her and after taking part in the Youth Program herself in 2023, she became the Youth Leader for MRKH Connect in 2024.