WE ARE MRKH CONNECT
‘Alone we can do so little; together we can do so much’
Our Trustee board provide MRKH Connect with knowledge and first hand experience of life with MRKH, medical understanding and information, communication skills and enthusiasm.
We are all here for you and the community. Contact us with your feedback, comments, questions and / or suggestions.
She was diagnosed with MRKH at 17. She is a geoscientist with an analytical brain and works as a project manager interpreting satellite imagery.
Her passion for a number of years has been to help support the community which has helped her, by helping others. She advocates for MRKH, support and improved research and care and started to write a public blog in 2014 which launched her outreach into advocacy more by chance and she hopes her writing, which helped her has become a useful resource for the public and community also.
Hasna is a British Bangladeshi Muslim woman and a passionate voice for those who come from cultures where women born with MRKH are too often shamed into silence as she once was. She never wants anyone to feel like she did.
She created the ‘MRKH Muslim Sisters Group’ on Facebook and works towards improving perceptions and reducing stigma across cultural taboos related to MRKH.
Ally was the original co-founder of Australia’s first MRKH organisations, Sisters for Love and MRKH Australia and in 2016 co-founded Global MRKH, the first international consortium for MRKH organisations. The mission behind this international first, is to improve care and knowledge among healthcare professionals across the globe.
Ally understands the importance of creating a safe, informed and inclusive space. With and her knowledge, experience and purpose to connect the community with ‘hearty-humanness’, Ally is a complementary asset to our team.
Finding out about her diagnosis in 2016, she felt like there was little out there for young people her age too. It was a lonely place and there were not many, if any, people her age to speak to who understood what she was going through. This is why Cerys hopes to help make a change in the MRKH community and create a safe space for other newly diagnosed young people to come too.
Her professional experience working with those with MRKH, both through one to one therapy or group therapy sessions, brings so much value to the MRKH Connect team.
Charlie’s mum provides an objective view and different insight, providing balance to the team. Her input has also been very helpful in compiling the public resources based on what she wished had been available when Charlie was diagnosed.
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