WE ARE MRKH CONNECT
‘Alone we can do so little; together we can do so much’
Our Trustee board provide MRKH Connect with knowledge and first hand experience of life with MRKH, medical understanding and information, communication skills and enthusiasm.
We are all here for you and the community. Contact us with your feedback, comments, questions and / or suggestions.
She was diagnosed with MRKH at 17. She is a geoscientist with an analytical brain and works as a project manager interpreting satellite imagery.
Her passion for a number of years has been to help support the community which has helped her, by helping others. She advocates for MRKH, support and improved research and care and started to write a public blog in 2014 which launched her outreach into advocacy more by chance and she hopes her writing, which helped her has become a useful resource for the public and community also.
Ally was the original co-founder of Australia’s first MRKH organisations, Sisters for Love and MRKH Australia and in 2016 co-founded Global MRKH, the first international consortium for MRKH organisations. The mission behind this international first, is to improve care and knowledge among healthcare professionals across the globe.
Ally understands the importance of creating a safe, informed and inclusive space. With and her knowledge, experience and purpose to connect the community with ‘hearty-humanness’, Ally is a complementary asset to our team.
She chose to be a youth leader, to give back to those who may need the help she needed when she was younger. She hopes being youth lead for MRKH Connect will create a safe space for those to come to, feel understood, heard and supported.
Finding out her diagnosis made her feel very alone in the world and she felt like there wasnβt a safe space for her to talk about it. This inspired her to join MRKH Connect and help others like herself to understand the diagnosis more and to not feel alone.
Experiences with the medicalization of her body fueled her to transform personal challenges into professional passion. She now promotes holistic sexual wellness in her personal practice and beyond.
As a collaborator on the MRKH and Intimacy page, Nikol brings her unique expertise and personal insight to support sensual confidence in others while they navigate the tricky, yet gorgeous world of romance and relationships.
Her professional experience working with those with MRKH, both through one to one therapy or group therapy sessions, brings so much value to the MRKH Connect team.
Charlieβs mum provides an objective view and different insight, providing balance to the team. Her input has also been very helpful in compiling the public resources based on what she wished had been available when Charlie was diagnosed.
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