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charlieabishop2025-04-07T21:49:49+00:000 Comments

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mrkhconnect

MRKH Connect is a charity with a mission to connect those with MRKH all over the world. No one should feel alone, we are 1 in 5000 #mrkhempowerment ❤️
🌟 1 week today 🌟 Join us for this year's Connect 🌟 1 week today 🌟 Join us for this year's Connect LIVE as we return to the big screen on 11th July 2026 in London! Our annual in person MRKH peer support event is designed to connect, inform, support and celebrate our MRKH community, our biggest milestones in UK and global advocacy, and most importantly, you. Follow the link in our bio to find out more and sign up today to join us in person or online. Tickets are FREE but if you wish to make a donation all proceeds will go straight back into the work we do supporting the MRKH community. Tagged 👉 some of our amazing speakers 💜 https://mrkhconnect.co.uk/connect-live-11th-july-2026/ 💜 #mrkh #infertility #event #warrior #mrkhwarrior
✨️New Research Opportunity✨️ A research team at T ✨️New Research Opportunity✨️ A research team at Texas Children’s Hospital - Baylor College of Medicine led by Dr. Niccolo Passoni are conducting a study focused on understanding the lived experiences, psychosocial needs, and support preferences of individuals with Mayer-Rokitansky-Küster-Hauser (MRKH) syndrome. They are currently distributing an anonymous survey designed to better understand: ✨️Experiences surrounding MRKH diagnosis ✨️Interactions with healthcare providers ✨️Access to emotional, psychological, and educational support ✨️Experiences with peer and support-group engagement ✨️Patient perspectives on unmet needs and future resource development Follow the link in our bio to "News" to find out more or follow the link https://tinyurl.com/348nrrb9 We believe in the value of research to better understand, inform and improve services/offerings available to our community and beyond which is where we believe research topics like this may be of interest. #mrkh #infertility #research #community #mrkhempowerment
Introducing our next MRKH CONNECT LIVE 2026 speake Introducing our next MRKH CONNECT LIVE 2026 speaker, Grace Bell. In this session Grace shares her story, “ MRKH and me: My journey through the uterus transplant program”. 💜 Grace, who lives in southern England with her partner Steve, was diagnosed with MRKH when she was 16. Now, she is the first person to have a baby as part of the approved deceased donor womb transplant research programme, which was initiated and funded by the charity Womb Transplant UK. Earlier this year, the arrival of Baby Hugo hit global headlines, ushering hope and happiness for the MRKH community. In this session, Grace will share her journey through the Uterus Transplant program, and the impact of this pioneering surgery. To register to attend MRKH LIVE IN LONDON, head to the link in our bio! 👆 #mrkh #mrkhevent #community #mrkhempowerment #uterustransplant
Introducing our next MRKH CONNECT LIVE 2026 speake Introducing our next MRKH CONNECT LIVE 2026 speaker, Ally Hensley. This session will explore: The MRKH Emotional Toolkit. 💜 Ally Hensley is an author, speaker, stigma shaker and global ambassador for women’s health and happiness. Ally has written for leading publications on mental health, infertility and body positivity, and has become a regular media contributor on her experience of being born with MRKH, a medical condition resulting in the absence of a womb and vagina. As an international spokesperson for MRKH on how to redefine womanhood on her own terms, Ally advocates to raise support and awareness of this life-altering diagnosis. She founded Australia’s first MRKH organisation, MRKH Australia, in 2013, co-founded Global MRKH in 2016 and is a board member of the UK’s flagship charity, MRKH Connect. Her podcast Stigma Shakers recently launched, and just two seasons in, this stigma-focused show has been featured by the BBC, among many other national publications, and has reached over 150k views. Now, Stigma Shakers is recognised as not just a taboo-tackling platform, but a social movement, in questioning: ‘Is the only thing normal in this world difference?’ Ally works to reduce the stigma surrounding sexual (mental) health and prompts conversations that matter. Ally understands the importance of creating a safe, informed and inclusive space. With her knowledge, experience and purpose to connect the community with ‘hearty-humanness’, Ally is a complementary asset to the MRKH Connect Board of Trustees. To register to attend MRKH LIVE IN LONDON, head to the link in our bio! 👆 #mrkh #mrkhevent #community #mrkhempowerment #shame
Introducing our next MRKH CONNECT LIVE 2026 speake Introducing our next MRKH CONNECT LIVE 2026 speaker, Anna Brown. This session is a panel discussion focusing on how we can recognise and reduce stigma titled, ‘Name It, Don’t Shame It’. 💜 Anna Brown is from Scotland, she was diagnosed with MRKH at the age of 17. At the time, there was little information available about the condition or where to find meaningful support. Highlighting how important connection and awareness is, inspiring her to become involved in the community and to ensure that no one diagnosed with MRKH feels alone. Anna and her partner are currently navigating the world of surrogacy and exploring what the journey to building their own family looks like. Through this process, she has gained an understanding of the options and existing frameworks available to women with MRKH who wish to start a family. This has sparked a passion to share knowledge, open conversations, and help others in similar situations explore the possibilities available to them. To register for this incredible event, please head to the link in our bio ✨ #mrkh #mrkhevent #mrkhcommunity #mrkhwarriors
Introducing our next MRKH CONNECT LIVE 2026 speake Introducing our next MRKH CONNECT LIVE 2026 speaker, Karen Martin. This session is a panel discussion focusing on how we can recognise and reduce stigma titled, ‘Name It, Don’t Shame It’. 💜 In Karen’s words... Hi, I’m Karen, I was born in the 1970s in Dublin Ireland but for the past 23 years l have lived in North Wales with my husband, Jamie. Aged 21, l qualified from university and began working for myself in private healthcare. I have been self-employed for the last 35 years and l still love it. My passions are swimming, yoga and walking. MRKH impacts me daily, but I now have learned some of the skills to understand and process the emotions that come up. In the past 5 years my life has changed dramatically (for the better) by finding others with MRKH around the world. For many years l was alone with my diagnosis but now feel part of a fantastic global community. Many of my MRKH sisters are now my best friends. To register for this incredible event, please head to the link in our bio ✨ #mrkh #mrkhevent #mrkhcommunity #mrkhwarriors
Introduction our next MRKH CONNECT LIVE 2026 speak Introduction our next MRKH CONNECT LIVE 2026 speaker, @vicslane.xo . This session is a panel discussion focusing on how we can recognise and reduce stigma titled, ‘Name It, Don’t Shame It’. 💜 Vics is a secondary school teacher by day, and is also the Founder and Co-Director of MRKH Stars, a small charity and advocacy group focused on building resources, support and awareness of MRKH. MRKH Stars is particularly focussed on supporting the young and newly diagnosed community, and Vics uses her lived experience with MRKH combined with her professional experience as a teacher in building a platform full of accessible and engaging resources and conversations. Vics was diagnosed with MRKH in 2019 has been sharing her MRKH story online since 2020, jumping into the advocacy world quickly, and building lifelong connections from day one. It was the support that Vics received in her early days with MRKH that led her to create MRKH Stars. Since sharing her story, Vics has both written and featured in articles in magazines, papers and publications, and she has also starred in podcasts and various support group events and initiatives. Vics now manages a team of around 50 advocates, all of whom have MRKH and turn to her for support, guidance and a friendly face. She has devised support programmes, created and organised bespoke resources, and works to build a space that has everything an individual with MRKH might need. Behind everything she does is a deep rooted passion for ensuring people with MRKH don’t have to face this journey alone. To register for this incredible event, please head to the link in our bio ✨ #mrkh #mrkhevent #mrkhcommunity #mrkhsupporters
Introducing our next MRKH CONNECT LIVE 2026 speake Introducing our next MRKH CONNECT LIVE 2026 speaker, Aysha Khawaja. This session is a panel discussion focusing on how we can recognise and reduce stigma titled, ‘Name It, Don’t Shame It’. 💜 Diagnosed with MRKH just before her 15th birthday, Aysha has turned her journey into a passion for advocacy, awareness, and supporting others. She is actively involved with MRKH Connect, MRKH Stars, and Beautiful You (USA), sharing her story through blogs, vlogs, research projects, and awareness campaigns. Aysha is particularly passionate about discussing the cultural and religious aspects of living with MRKH and ensuring women from Muslim and diverse cultural backgrounds feel seen, heard, and supported. Through her advocacy, she hopes to connect and empower others affected by MRKH and help them feel less alone. To register for this incredible event, please head to the link in our bio ✨ #mrkh #mrkhevent #mrkhcommunity #mrkhsupporters —
Introducing our next MRKH CONNECT LIVE 2026 speake Introducing our next MRKH CONNECT LIVE 2026 speaker, Shelley Saxby. This session will focus on: An MRKH Supporter Perspective. 💜 Best friend and confidant to Charlie for over 30 years, Shelley brings design and creativity to the team along with experience garnered from her own fertility challenges through suffering with PCOS and her own journey through IVF. Shelley serves as a Trustee on the MRKH Connect Board and is a valued member of the team, bringing her passion for education and peer support for the supporters to the forefront of our goals. To register for this incredible event, please head to the link in our bio ✨ #mrkh #mrkhevent #mrkhcommunity #mrkhsupporters
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