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CONTACT MRKH CONNECT

Recent Posts

  • My Journey
  • Empower DSD Event: Germany 10-11th December
  • MRKH in the News
  • Connect With Friends – 28th November 2021
  • MRKH Connect support Community Christmas meal – 20th Nov 2021

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Pain is real, but so is hope. So easy to forget Pain is real, but so is hope. So easy to forget but so true. Never think your pain isn't valid because it is. But know that hope exists too. Even on those bad days that we all have from time to time, there is hope for something better. 🎨@iuliastration #mrkh #mondaymotivation #inspiration #letsconnect #journey #friendship #connectwithfriends #support #community #mrkhsyndrome #peersupport #rokitanskysyndrome #hope #advocacy #charity #diagnosis #infertility #mrkhwarrior #infertilitywarrior #mrkhempowerment #mrkheducation #strongertogether #inspiration #wellness #wellbeing #positivevibes #positivethinking #goddess #strength
We really like this piece from Shravani who really We really like this piece from Shravani who really wanted to share some of her story and how despite her MRKH diagnosis she feels inspired. Inspired by others and inspired to inspire others. This statement in particular really rang true. You are beautiful just as you are. You are never less. Read a bit more about her journey by following the link to our Blog page in our bio and you will fine "My Journey". MRKH is a journey. Every MRKHer on their own path navigating a way through, in their own time, with often a few bumps along the way. Thank you for having the courage to share ❤ If you would like to share your story or experience please do get in touch we always love to hear from you, can work with you on your piece and share if or when you feel comfortable to. Pieces can also be anonymous ❤ #mrkh #infertility #mrkhwarrior #mrkhempowerment #mrkhsyndrome #mrkheducation #1in5000 #disclosure #inclusivity #health #support #community #growth #courage #blog #anxiety #wellness #wellbeing #infertilitywarrior #strongertogether #peersupport
It is important that there are MRKH resources, inf It is important that there are MRKH resources, information and support in different languages and we know this is something that needs to improve to ensure everyone has the access they need in the way that is best for them. Empower-DSD is a clinical research project funded by the German Government which started in 2019 and runs for 4 years. It brings together 5 DSD Clinics in Germany (Berlin, Lübeck, Münster, Ulm, Bochum). They have a specific MRKH workshop event (in German) coming up 10/11th December and are encouraging the German community to apply. We have added some details of the project in English as well as a link to the German resources and how to sign up at https://mrkhconnect.co.uk/empower-dsd-event-germany-10-11th-december/ Note this is not an MRKH Connect initiative but we think it is great to share research, especially in different languages that are seeking to improve our understanding, support and patient experience. #mrkh #positive #inspiration #motivation #letsconnect #journey #friendship #patience #connectwithfriends #support #community #mrkhsyndrome #peersupport #rokitanskysyndrome #hope #advocacy #charity #diagnosis #infertility #mrkhwarrior #infertilitywarrior #mrkhempowerment #mrkheducation #strongertogether #inspiration #wellness #wellbeing #MRKHSyndrom
A diagnosis of MRKH doesn't mean you are broken. A diagnosis of MRKH doesn't mean you are broken. It doesn't mean you need to be fixed. MRKH is part of you but it doesn't define you. As much as it might be something we wished we didn't have it also plays a part in our individuality. In the strength we gain and the courage to overcome. #mrkh #positive #inspiration #motivation #letsconnect #journey #friendship #patience #connectwithfriends #support #community #mrkhsyndrome #peersupport #rokitanskysyndrome #hope #advocacy #charity #diagnosis #infertility #mrkhwarrior #infertilitywarrior #mrkhempowerment #mrkheducation #strongertogether #inspiration #wellness #wellbeing
Yes to this all day long 🙌 You are more than e Yes to this all day long 🙌 You are more than enough and if anyone doesn't see that it is their loss 🎨 @illustratedbydana #mrkh #positive #inspiration #motivation #letsconnect #journey #friendship #connectwithfriends #support #community #mrkhsyndrome #peersupport #rokitanskysyndrome #hope #advocacy #charity #diagnosis #infertility #mrkhwarrior #infertilitywarrior #mrkhempowerment #mrkheducation #strongertogether #inspiration #wellness #wellbeing
Have you seen our new Path to Parenthood page yet? Have you seen our new Path to Parenthood page yet? This is a dynamic page where we add and update with new resources as we have them and we would love to share your stories, your favourite resource or organisation to add to this page so it can help the next person on their journey. As we all know "family" takes many forms, comes in many varieties and not every family includes children. We are no less, or more, whichever path we take. Our stories, the good, the bad and the ugly do help others. They help others know they are not alone in the experience, they provide hope and they provide advice. Our stories are powerful tools to help others, likely more than we would expect. We know these topics are often triggering and emotional but that is because they are important to us. For those whose future doesn't include children either through choice or circumstance then we have a separate space called Life without Children full of resources and personal experiences. For the community, by the community If you have something you would like to share then pieces can be provided in any form (written, audio, video, creative etc) and can of course be anonymous, DM us for more details ❤ #pathtoparenthood #ttc #strongertogether #adoption #surrogacy #mrkh #ivf #mrkhawareness #hope #raisingawareness #support #peersupport #community #infertility #mrkhsyndrome #mrkheducation #mrkhwarrior #mrkhempowerment #health #uterustransplant
A diagnosis of MRKH can rarely feel like something A diagnosis of MRKH can rarely feel like something to celebrate yet on Saturday it really felt like a celebration. A celebration of our uniqueness of having fun and that our beauty and worth is not defined by whether we have a womb or not. We were delighted to be able to support this event and help make it more accessible and affordable by contributing some money to a fantastic informal Christmas 🎄 meal arranged by the lovely Ellamae. This event was full of smiles and laughs and fun and highlights just how important events that bring the community together are. We were set up to Connect those with MRKH together and being able to contribute to these types of events as well as run our own are a big part of what we are here to do and we are so pleased that an in person event was finally possible. Thank you to all who came. A special acknowledgement to those who came despite the nerves you had, to those who had never met anyone else and those who were meeting old friends. These events can be overwhelming so please don't hesitate to reach out if you need to. Wherever you are in your journey we are here. We can't wait for more in person events in 2022 around the country and beyond 🙌 #mrkh #letsconnect #journey #friendship #connectwithfriends #support #community #mrkhsyndrome #peersupport #rokitanskysyndrome #hope #advocacy #charity #diagnosis #infertility #mrkhwarrior #infertilitywarrior #mrkhempowerment #mrkheducation #strongertogether #inspiration #wellness #wellbeing
Hi 👋 we haven't introduced ourselves for a whil Hi 👋 we haven't introduced ourselves for a while so we thought we would do a quick hello and tell you a bit about MRKH Connect. We are a UK registered charity founded in 2014 focusing on connecting those with MRKH syndrome together whilst also raising awareness, providing resources ans support to all wherever they are in their journey. We are an executive board of 6 - Charlie, Hasna, Adrienne, Shelley, Michelle and Ali with a wealth of experience and background providing lived MRKH experiences, fertility experiences, an MRKH mum and friend, website and marketing and a psychologist. It's been an amazing journey since we took over in 2019 and has built on the great foundations set by our founders Kelly and Janet. We are here for all, whether you are an MRKHer, have questions about MRKH or you are an MRKH supporter find out more about what we offer the community (and public) at www.mrkhconnect.org Interested in doing more to support the MRKH community? Well we have a program launching soon where you can join our team! What is MRKH? MRKH syndrome affects approx 1 in 5000 female births and leads to the absence (or underdevelopment) of the uterus, cervix and shortening of the vagina. There can be different variations broadly typified by Type 1 and 2. It is often diagnosed around age 16/17 when periods don't startand can have a significant impact on mental health and well being. Whilst those with MRKH cannot carry their own child, many who wish to have children explore the use of their own eggs through IVF Surrogacy or explore alternatives such as Adoption. Find out more at www.mrkhconnect.org #mrkh #meettheteam #letsconnect #journey #friendship #connectwithfriends #support #community #mrkhsyndrome #peersupport #rokitanskysyndrome #hope #advocacy #charity #diagnosis #infertility #mrkhwarrior #infertilitywarrior #mrkhempowerment #mrkheducation #strongertogether #inspiration #wellness #wellbeing
Sometimes we wake up with the weight of the world Sometimes we wake up with the weight of the world and other days we wake up standing on the highest peak and filled with joy. Wherever you are on your journey may it be filled with hope Sending you all love and hugs for the weekend 🤍 🎨@nikkimiles_ #mrkh #mrkhempowerment #raisingawareness #mrkhwarrior #inspiration #hope #findyourhappy #quotes #mindful #support #community #lifeisajourney #mrkheducation #rokitanskysyndrome
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