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Recent Posts

  • Living Without a Uterus
  • MRKH and the Menopause
  • MRKH Connect Challenges Community to Complete 5000 in 50
  • The Secret Inside – Lauren
  • Barriers to Accessing Care: UK MRKH Survey

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Raising awareness is so important. Our 5000 in 50 Raising awareness is so important. Our 5000 in 50 challenge is all about raising awareness of MRKH so the publication of this article is very timely! Recently @charlieabishop was interviewed by @southwestlondoner for a piece on MRKH. This piece shares some of her story, her experiences and perceptions as to some of the challenges faced by those with MRKH and some of the ways she and MRKH Connect are working, with the community, to improve how we talk about our bodies, how we raise awareness where we can and remove stigma associated with infertility The piece also shows MRKH advocates @walkingwithmrkh and @mindfullalove and they opted to also include one of our #letsconnect pieces (all included with permission). Link to the SW Londoner article in our bio! ❤❤ #MRKH #mrkhawareness #1in5000 #rokitanskysyndrome #mrkhsyndrome #mrkhempowerment #mrkheducation #mentalhealthawareness #mentalhealth #selfcare #support #MRKHcommunity #community #diversity #fertility #infertility #selfcare #selflove #YouAreNotAlone #gynaehealth #sexualhealth #health #womanshealth #sexeducation
Yes to this!! Day 1 is nearly over but great pics Yes to this!! Day 1 is nearly over but great pics and stories shared across social media! @katiemorris90 #mrkh5000in50 #firstday5k #letsdothis #raiseawareness #raisingawareness #virtualevent #mrkhawareness #1in5000 #rokitanskysyndrome #mrkhsyndrome #mrkhempowerment #mrkheducation #mentalhealthawareness #mentalhealth #selfcare #support #MRKHcommunity #community #diversity #fertility #infertility #fitness #selfcare #selflove #YouAreNotAlone #sexualhealth #health #womanshealth #teamwork
Calling all MRKHers...whether you are doing #mrkh5 Calling all MRKHers...whether you are doing #mrkh5000in50 or not why not join in with this great initiative from our friends @mindovermrkh. It runs throughout May and starts tonight 8pm UK time! The event is free to attend, sign up in our bio! Please note this event is only for those with MRKH but many of our in challenge events will be open to everyone so keep an eyes peeled for more! #letsdothis #raiseawareness #raisingawareness #virtualevent #mrkhawareness #1in5000 #rokitanskysyndrome #mrkhsyndrome #mrkhempowerment #mrkheducation #mentalhealthawareness #mentalhealth #selfcare #support #MRKHcommunity #community #selfcare #weareinthistogether #teamwork #Repost @mindovermrkh (@get_repost) ・・・ LINK IN BIO! Calling all MRKHers! 🌈Want to join our mindful journal & art club? Every week we’re going to virtually sit together to write and make art for an hour! Each week will be a different theme. Our first club running from 5th May to 2nd June is totally free and in the future there will be a small fee to support us ❤️ Every Wednesday @8pm there will be a different theme so grab your free spaces! ❤️Remember ❤️to sign up to the @mrkhconnect 5000 in 50 (£5 entry) as the time you spend writing, journaling and creating art at our events can contribute to the 5000 hours in 50 days! Let’s do this! 🌈🌈🌈 Edit- 2nd event is 12th May! Apologies (it’s correct on the website) • #mrkh #mrkhevents #infertility #mindful #events #mrkhwarriors #artevents
Day 1 is here!!!! We want to get this event kick Day 1 is here!!!! We want to get this event kick started in style so we have a first day challenge for you all #firstday5k. Whether you walk, run, swim, cycle or whatever other creative method you can think of why bot challenge yourself to do a 5k and tag us to let us know how you are doing! For all registrants don't forget to check your email for am update from us #mrkh5000in50 is all about raising awareness for MRKH a congenital condition affecting 1 in 5000 females. We as a community want to improve access to care, support and knowledge of this condition and we are stronger doing this together. Thank you to everyone participating, for our community partners, our fab prize donors and our giveaway suppliers. Lots more fun to come! Not signed up yet? Hurry, sign up closes today at 3pm CEST! Follow the link in bio to find out more #mrkh5000in50 #letsdothis #raiseawareness #raisingawareness #virtualevent #mrkhawareness #1in5000 #rokitanskysyndrome #mrkhsyndrome #mrkhempowerment #mrkheducation #mentalhealthawareness #mentalhealth #selfcare #support #MRKHcommunity #community #diversity #fertility #infertility #fitness #selfcare #selflove #YouAreNotAlone #sexualhealth #health #womanshealth #teamwork
1 more sleep!!!!! Our final ⭐spotlight on our 1 more sleep!!!!! Our final ⭐spotlight on our #mrkh5000in50 partners⭐ is us.... MRKH Connect!!! We were set up in 2014 by Kelly and Janet to connect those with MRKH together and after relaunching with a new look and new team in 2020 we are so proud to be build on that foundation and bring together people and resources to raise awareness of MRKH and ensure no one with MRKH feels alone. We are donating one of our brand new hampers full of great Connect merchandise and gifts from our community we are so proud to share. But we are not the only ones behind #mrkh5000in50...Charlie and Hasna from Connect teamed up with Katie and Ellamae to bring you this new and novel way to raise awareness, promote wellbeing and have fun too. Event starts tomorrow and registration closes at 3pm CEST / 2pm UK time! If you have signed up be sure to watch out for an email from us...sometimes we might be lurking in your junk folder :). Another email coming later tonight. Find our more about 5000 in 50 and how to sign up by following the link in our bio #mrkh5000in50 #letsdothis #raiseawareness #raisingawareness #virtualevent #mrkhawareness #1in5000 #rokitanskysyndrome #mrkhsyndrome #mrkhempowerment #mrkheducation #mentalhealthawareness #mentalhealth #selfcare #support #MRKHcommunity #community #diversity #fertility #infertility #fitness #selfcare #selflove #YouAreNotAlone #sexualhealth #health #womanshealth #teamwork
Our last example, through this super speedy clip b Our last example, through this super speedy clip by @mindfullalove, activity is A R T S & C R A F T S But remember these are just examples under the themes of Fitness, Writing, Craft and Well being What you chose to do is up to you Art therapy through crafting can be such a great way to relax. Whether it is collaging or sewing or knitting, or anything in between, there are so many ways that art can be used, and is increasingly used, for therapy. Even better art is subjective so you don't have to be a grand master 🙌 - definitely a good way to have fun. Also if you are an MRKHer and you want to meet others whilst earning activity time then for why not join the MRKH Art and Journaling club starting on 5th May? Check out our grid for more! A great way to count towards your 5000in50 activity too! We will have plenty of other in challenge events open to all including our wonderful MRKH supporters who have signed up! More to come 🙂 === 2 days to go until the event starts!!! Activities range from physical fitness to mental health and wellbeing to not only make it accessible to all but to provide us all a personal challenge. This event is open to everyone, wherever you are in the world so grab your friends, family and colleagues as we embark on something new and exciting for our community! With lots of fun to have along the way! Follow the link in our bio to find out more and to sign up today! #mrkh5000in50 #arttherapy #craft #drawing #raisingawareness #virtualevent #mrkhawareness #1in5000 #rokitanskysyndrome #mrkhsyndrome #mrkhempowerment #mrkheducation #mentalhealthawareness #mentalhealth #selfcare #support #MRKHcommunity #community #diversity #fertility #infertility #fitness #selfcare #selflove #YouAreNotAlone #sexualhealth #health #womanshealth #teamwork
💜L A S T C A L L💜 Final day to share your 💜L A S T C A L L💜 Final day to share your thoughts for our UK patient survey! We hope you will consider participating in this anonymous survey to help us understand what's changed and what needs improvement when considering access to support and how we can help support you better. Read more below! ===== We are delighted to team up with Ruveyda Aki a Health Psychology MSc student from King's College London to research the topic of Barriers of Accessing Care (peer and professional) in the UK. Ruveyda has been working with us as part of her MSc and was really interested to delve into this topic and understand more about how, from a patient perspective, care could be improved. Given this is such a short placement the focus here is UK only but we hope to work with our community peers to widen the survey in different regions in due course. The survey will take approximately 10minutes, is open to all who were diagnosed or who have accessed support services in the UK. Follow 'UK MRKH Survey' in our linktr.ee in bio to find our more and complete the survey. #bepartofthechange #change #haveyourvoiceheard #mrkh #survey #mrkhsurvey #diagnosis #health #support #mrkhawareness #mrkhwarrior #disclosure #raisingawareness #1in5000 #improvingcare #normalisetheconversation #mrkhsyndrome #coping #mrkheducation #mrkhempowerment #mrkhlife #gynaehealth #womanshealth #community #sexualhealth #mentalhealth #mentalhealthawareness #fertility #infertility #fertilitymatters
In fact it can also be more important at times. In fact it can also be more important at times. As May is Mental Health awareness month and Mental Health awareness week is coming up next week it's a great reminder for us to always look out for our mental health. We will be providing a range of resources throughout May that you might find useful 💛 So happy our #mrkh5000in50 is also in May promoting not just physical but also mental health. It's like we planned it! 😉 #raiseawareness #raisingawareness #mrkh #mrkhawareness #1in5000 #rokitanskysyndrome #mrkhsyndrome #mrkhempowerment #mrkheducation #mentalhealthawarenessmonth #coping #mentalhealthawareness #mentalhealth #selfcare #support #community #fertility #infertility #selfcare #selflove #YouAreNotAlone #sexualhealth #health #womanshealth
⭐Spotlight on our #mrkh5000in50 partners⭐ Nex ⭐Spotlight on our #mrkh5000in50 partners⭐ Next up is Canada's MRKH Conference an initiatve set up by @ashley_t_clark who are donating a prize basket full of goodies. "My goal is to support, educate and empower those born with MRKH Syndrome, like myself, as well as healthcare providers to improve the patient experience for people with MRKH" Canada’s MRKH Conference is currently the only patient-run resource for those with MRKH in Canada. In addition to annual events, virtual meet-ups and fundraisers, they support other MRKH initiatievs such as MRKH identification cards to help make communication easier between MRKH patients and doctors who may not be familiar with the syndrome. "As an advocate, I've spoken to MRKH people and supporters at international MRKH conferences and publicly at organized fundraisers for Canada’s MRKH Conference gaining media attention from local news stations and newspapers. I also speak annually at a local high school, educating teenagers in the Emergency Response Focus Program about how what we're taught in sex ed is only touching the surface of how our bodies can develop" We are so happy to have Ashley's support and also be able to promote the work they do and look forward to continuing work together to our collective goal of raising awareness of MRKH, wherever you are. Event starts 5th May, 5000 hours in 50 days, 5 great prizes + giveaways and a whole lot of awareness raising and fun along the way.. find out more and sign up today (Link in bio) Registration closes 5th May 3pm CEST (2pm UK time) #mrkh5000in50 #raisingawareness #virtualevent #mrkhawareness #1in5000 #rokitanskysyndrome #mrkhsyndrome #mrkhempowerment #mrkheducation #mentalhealthawareness #mentalhealth #selfcare #support #MRKHcommunity #community #diversity #fertility #infertility #fitness #selfcare #selflove #YouAreNotAlone #bodypositivity #stigmashaking #normalisetheconversation #sexualhealth #health #womanshealth #teamwork
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