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Logo-ohne-clearspacecharlieabishop2025-06-30T16:27:58+00:00

CONTACT MRKH CONNECT

Recent Posts

  • Beyond Silence – My Journey of Strength with MRKH
  • Connect With Friends – 16th November 2025
  • Could you be our new Board member?
  • Beautiful Warrior – How I manage doctors appointments
  • BMJ Article: Fertility treatment access for MRKH patients

mrkhconnect

MRKH Connect is a charity with a mission to connect those with MRKH all over the world. No one should feel alone, we are 1 in 5000 #mrkhempowerment ❤️
✨️ Every Voice Matters ✨️ It's so powerfu ✨️ Every Voice Matters ✨️ It's so powerful to hear personal stories that we can not only relate to but that can also provide comfort and support. For some of us being silent is how we have learnt to "be" with our diagnosis. Whether those reasons are because of personal, cultural circumstance or aomething else. It is true that advocacy doesn't have to be public but finding a way to communicate, to access support and know you are not alone is powerful and often vital for our path to acceptance. This blog is so powerful especially under the theme of Fertility Awareness Week #every voice #everyjourney. Thank you, Dewi Amalia for this fantastic blog 💜 ---- If you have a story to share we would love to work with you to help you share in the way most comfortable to you. Pieces can be one off, anonymous and in any form of media. We have an open submission for blogs. Read more at "Blogs" in our bio! #blog #journey #storytelling #nfaw #YouAreNotAlone #nationalfertilityawarenessweek #europeanfertilityawarenessweek #mrkh #mrkhwarrior #mrkheducation #mrkhempowerment #infertility #representationmatters #mentalhealth #support #community #peersupport #writer #storyteller
This week is National Fertility Awareness Week in This week is National Fertility Awareness Week in the UK this year, focusing on Every Voice, Every Journey. Every voice matters, and every journey with fertility matters, and we look forward to amplifying some of those voices during this week and raising awareness of MRKH in the process. Whether you have MRKH other fertility issues or simply unexplained fertility, this week is designed to raise awareness, share resources, and help you know you are not alone. Find more resources and events throughout this week from @fertilitynetworkuk @fertilityalliance and many more 🧡 #infertility #mrkhawareness #hope #mrkh #mentalhealth #wellbeing #wellness #support #peersupport #mrkhsyndrome #mrkheducation #mrkhwarrior #mrkhempowerment #health #mrkh #inspiration #friendship #community #rokitanskysyndrome #infertilitywarrior #strongertogether
Today is World Fertility Day! A day dedicated to Today is World Fertility Day! A day dedicated to raising awareness of all things fertility including to inform, educate to supporting anyone affected by or struggling with fertility. Fertility issues can affect anyone wherever they are in the world. It knows no borders and that is why it is a global challenge especially where access, and rights to access, can vary dramatically. Even here in the UK. So today we recognise all affected by fertility and stand with our fellow organisations who, like us, are trying to make positive changes for all 🧡 #worldfertilityday #fertilityrightsmatter #infertility #raiseawareness #mrkh #warrior #support #community #strongertogether #peersupport #health #mentalhealth
When life throws curve balls, it's not easy. In f When life throws curve balls, it's not easy. In fact, it can be life changing. But life does still continue, it doesn't stop, and we have to gind a way to move and live and grow around those obstacles in the best way we can. A diagnosis doesn't define us, it will simply always be a part. Maybe we have to forge a path away from our original plan. But what if that was simply taking us where we were always meant to be? 💜 🎨@powerofpositivity #mrkh #journey #mrkhawareness #mrkhempowerment #mrkheducation #mentalhealth #support #peersupport #community #infertility #diagnosis #courage
As we head into the weekend it's important to reme As we head into the weekend it's important to remember that we are not defined by our diagnosis. If someone can't handle that, then let them find less because You are enough You are worthy and You are beautiful. 💜 #iamworthy #mrkh #mrkhempowerment #mrkhempowerment #mrkhawareness #courage #hope #infertility #support #peersupport #community #health #mentalhealth #strongertogether #journey #youarenotalone
A unique opportunity to be part of a charity 💜 A unique opportunity to be part of a charity 💜 1 week left to apply to join our expanding team! We are looking for UK based MRKHers to join our Trustee Board! Have you got an interest in doing more in the MRKH community? If that answer is yes, this is a unique opportunity to be part of a charity and join our team in the overall running and activities we do. We welcome applications from MRKHers at whatever stage of their journey. What should I consider if I want to apply? 🌟No prior experience at a charity is necessary, just a motivation and enthusiasm to contribute 🌟Only for MRKHers over 18 who live in the UK 🌟You do not need to be a public advocate now or in the future 🌟All training (Safeguarding/DBS etc) is provided Find out more at the link (also through News in our Bio) or DM for more information. https://mrkhconnect.co.uk/trustee-application/ Applications close 7th November!! 🤍 #mrkh #mrkhwarrior #warrior #community #iamwoman #peersupport #support #charity #trustees #mrkhempowerment #mrkheducation #infertility #information #research #mentalhealth #health #womanshealth #gynaehealth #courage #strongertogether #strength
One year ago the Connect team celebrated one of ou One year ago the Connect team celebrated one of our own, Ally, at her wonderful book launch. A book that HAS made a difference to the community. VAGINA UNCENSORED: A Memoir of Missing Parts, shares Ally's journey with MRKH, to inspire and inform while posing the important question: What really makes a woman? “This book isn’t just for people with a certain condition: it’s for anyone who has felt ‘other’; anyone who has felt like they’re being left behind; anyone who has questioned their role in society (and what it means if you don’t hit universally agreed-upon milestones)." So we say a big congratulations and happy book birthday to @ally__hensley thank you for your honesty and openness and being unequivocally you 💜 #mrkh #mentalhealth #mrkheducation #mrkhempowerment #womenshealth #health #author #bodypositive #stigmashaker #taboobreaker #mrkhwarrior #infertility #mrkhawareness #community #support #peersupport #mrkheducation
What is MRKH ----> 💜 As we continue our drive What is MRKH ----> 💜 As we continue our drive for improved awareness of MRKH we are resharing this oldie but goodie! MRKH (Mayer Rokitansky Küster Hauser) Syndrome is a congenital condition that affects 1 in 5000 female births. It leads to the absence or underdevelopment of the uterus, cervix and shortening of the vagina. The ovaries are not typically affected. There are two types. Type 1 as described above and Type 2, which is less common, where additionally the kidneys, bones, heart or hearing may be affected. 3 years ago we had the privilege to collaborate with our Italian Roki friends @guerriereroki and @designsbyduvetdays to make this artistic representation of MRKH and how it typically affects the reproductive system. This adds to the collection of other beautiful anatomical art pieces Jenna designs. It was designed to celebrate our beauty, and we like to also think it shows the growth and ability to flourish despite the impact that an MRKH diagnosis can have. We are more than our diagnosis 🤍 -- MRKH Connect is a charity registered in 2014 designed to connect those with MRKH together to ensure they don't feel alone. Provide support to those with MRKH and their families and promote education of MRKH to all. If you would like to donate to our current fundraiser 5000 in 50 please follow the link to find out more! https://www.justgiving.com/campaign/mrkh-5000-in-50-2025 #warrior #mrkh #journey #digitalart #support #community #mrkhsyndrome #peersupport #rokitanskysyndrome #hope #diagnosis #infertility #mrkhwarrior #youarenotalone #infertilitywarrior #mrkhempowerment #mentalhealth #mrkheducation #strongertogether #inspiration #wellness #wellbeing Design: © Designs By Duvet Days / All Rights Reserved Shop: DesignsByDuvetDays.co
Each year National Adoption week focuses on raisin Each year National Adoption week focuses on raising awareness for adoption and celebrates the power of adoption. In recognition of this special week we are resharing this wonderfully touching quote from MRKHer Klara. Adoption may have always been a path you wanted to take, or an option pursued in part due to circumstance but whatever the reason these personal stories matter and their experiences help us learn. If you want to learn more we also encourage you to check out Karen's adoption journey on our Path to Parenthood page (link in bio) for more insight into the process, the ups and downs and the overwhelming feeling of love that prevails. 💜 #yyoucanadopt #nationaladoptionweek #hope #journey #mrkh #community #support #peersupport #infertility #warrior #mrkhwarrior #strength #mrkhempowerment #friendship #mentalhealth #disclosure #journey #adoption #strongertogether #mentalhealth #pathtoparenthood #mrkheducation #1in5000 #positive #courage
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