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MRKH Indiacharlieabishop2025-06-30T16:45:20+00:00

CONTACT MRKH CONNECT

Recent Posts

  • MRKH in the News: When hope wins
  • New MRKH Memoir
  • Connect With Friends – 14th December 2025
  • MRKH Christmas Social – 6th December 2025
  • Beyond Silence – My Journey of Strength with MRKH

mrkhconnect

MRKH Connect is a charity with a mission to connect those with MRKH all over the world. No one should feel alone, we are 1 in 5000 #mrkhempowerment ❤️
✨️MRKH in the News✨️ We are delighted for ✨️MRKH in the News✨️ We are delighted for MRKHer @georgiaemilyb Whose best friend @daisyhopexx helped her to have a baby via surrogacy. Their story shared with Emma Barnett and BBC News shows the reality of what so many of us experience upon diagnosis. The lack of awareness by medical professionals and a deep sense of loneliness sitting with a condition we are totally unprepared for. Sharing our experiences does help others it provides, hope and comfort and relatability. By raising awareness for MRKH it also plays a part in elevating women's health in media where it is so often underrepresented. Thank you Georgia and congratulations on baby Ottilie 💜 == Mayer Rokitansky Kuster Hauser (MRKH) syndrome is a congenital condition that affects 1 in 5000 female births and leads to the absence or underdevelopment of the uterus, cervix and shortening of the vagina. Often diagnosed between the ages of 15-17 when periods don't start despite other puberty traits since ovaries are present. #mrkh #infertility #womenshealth Get @reshare_app • @bbcradio4 “She... said: “I’m really sorry to have to tell you, but, you don’t have a womb.” Emma Barnett is joined by Georgia Barrington who discovered she was born without a womb. Then her best friend, Daisy Hope, made her an extraordinary promise that she fulfilled over a decade later. Ready to Talk with Emma Barnett | Listen on BBC Sounds @emmabarnett
💜 #mrkh #support #strongertogether #raisingawa 💜 #mrkh #support #strongertogether #raisingawareness #mrkhwarrior #infertility #youarenotalone #courage #peersupport #information #infertility #mrkhempowerment #mrkheducation
✨️ NEW BOOK ✨️ We love being able to cele ✨️ NEW BOOK ✨️ We love being able to celebrate community milestones like this one where the amazing @kiska115 has her book out TODAY!! I Don’t Matter lays bare the moment a diagnosis of MRKH fractured everything Natalia thought she knew about herself — her womanhood, her future, her place in the world. As she rebuilds her identity piece by piece, the memoir follows her path from silent survival to self-acceptance, charting how one hidden condition reshaped her life, her relationships, and ultimately her sense of worth. This is not just a book about MRKH but a story of bravery, strength, and resilience. Congratulations Natalia we are so proud of you 💜 Follow the link in our stories to get your copy today! #mrkh #writer #journey
We can look back and wish things had been differen We can look back and wish things had been different, wish we had asked that question, done that thing. Isn't hindsight wonderful?! But if we were to look back now, what do we wish we had known when we were diagnosed? Maybe it was that there is support out there that took us so long to find. Maybe it was that there was little knowledge of MRKH in the medical community, and finding those specialists is key. Or perhaps even that you have found friendships you never expected to. Or...? We would love to hear from you below or drop us a DM 💜 #mrkh #warrior #community
Support. Means. Everything. Personal experiences Support. Means. Everything. Personal experiences like this, and others we share from mums, dads, partners, friends and even teachers, are powerful reminders of the support that sits behind us. Sometimes we might find it hard to articulate how much you help us become who we are today navigating our own journey whilst you navigate yours. So we want to say a massive thank you to you. Thank you for being there to listen, hug, support and love us even when you have the same limited information we do and you want to help us find a way forward. If you are one of these wonderful people, or have someone in your life who would be willing to share their experiences to help others we would love to hear from you. Submissions can be anonymous in any form. Check out our Friends and Family page for more! If you are a supporter in need of support, please also reach out. We will help in any way we can to signpost you, connect you and help you navigate this journey as we help each other to navigate ours. 💜 #mrkh #support #strongertogether #raisingawareness #mrkhwarrior #infertility #youarenotalone #courage #peersupport #information #infertility #mrkhempowerment #mrkheducation
🎄2weeks today!🎄 There is still time to sign 🎄2weeks today!🎄 There is still time to sign up for this year's Christmas get together in London. The perfect way to come together and make friends in a private and safe space with an afternoon event starting at 1.30pm organised by the lovely Ellamae @mindovermrkh. Tickets are £20 per person, which covers the cost of food as well as some crafty bits for a little bit of added creativity! Drinks purchased separately. We are so proud again to sponsor this annual event to help offset the cost for all 💜 This event is such a great way to come together in a relaxed environment, meet others, and find comfort whether this is your first time or you have been to many events like this, all are welcome. We know attending events can sometimes be scary, if you have any concerns or want to chat about what to expect then please get in touch. Plus 1s are also very welcome to sign up and join us too. Get in touch with us or @mindovermrkh for sign up info or drop a 💜 below 👇 We hope to see you there 💜 #mrkh #peersupport #community
Join us for our last virtual hug of the year at ou Join us for our last virtual hug of the year at our next Connect with Friends online event Sunday 14th December at 7pm GMT (UK time). This is an online peer support series designed to be relaxed and informal with the chance to chat and share, or just listen, with friends old and new💛 This is a safe space with no pressure to talk just an informal peer led event and a chance to chat with others. As with all our Connect with Friends this is only for those with MRKH and all MRKHers over 16 are welcome regardless of where you are in your journey. We hope to see you there 🤍 Follow the link in our bio to events to register. #connectwithfriends #mrkhawareness #hope #mentalhealth #wellbeing #wellness #mindful #support #peersupport #infertility #mrkhsyndrome #mrkheducation #mrkhwarrior #mrkhempowerment #health #mrkh #inspiration #friendship #community #rokitanskysyndrome #hope #infertilitywarrior #mrkheducation #strongertogether
Life continues to run ahead even when we need to s Life continues to run ahead even when we need to slow down. It can feel like we are constantly chasing to catch up but sometimes we just need to be true to ourselves and take a step back. We don't have to race ahead. We can take more time than we feel we can. Comparison is the thief of joy and our path can only ever be ours. 💜💜 🎨 @simply_anxious #journey #mrkh #warrior #mrkhwarrior #courage #hope #health #mrkhempowerment #mrkheducation #infertility #community #peersupport #support #YouAreNotAlone
💜💜 #mrkh #mrkhwarrior #warrior #community # 💜💜 #mrkh #mrkhwarrior #warrior #community #peersupport #support #mrkhempowerment #mrkheducation #infertility #journey #mentalhealth #health #charity #womanshealth #gynaehealth #courage #strongertogether #strength
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