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ChatroomsW0nderW0men2020_2020-06-01T15:36:45+00:00

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CONTACT MRKH CONNECT

Recent Posts

  • Reprofutures Research
  • Mental Health Awareness week 2022
  • MRKH Connect Challenges Community Again to Complete 5000 in 50
  • The Fertility Show Live!
  • National Infertility Awareness Week April 2022

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For so many of us this is the hardest part of an M For so many of us this is the hardest part of an MRKH diagnosis. How do you handle this big thing that just happened that you had no idea was possible and that you have had absolutely no preparation for? The truth is that most of us have felt this same feeling and there is no right way to react or be and absolutely no apology needed for the grief it brings because MRKH is HARD. We aren't designed to do life alone comfort can be gained from sharing with our loved ones or with others going through this, or through professional support. There are resources and support out there when you are ready but know also that taking time for you in this process is also important too. You are stronger than you think. 🤍 ==== Did you have any #FirstYearFears? Let us know in the comments or send us a DM. We would love to share more of your experiences to help the next MRKHer. Anonymous submissions are of course welcome, just like this one. Please reach out anytime you need support, a chat or just a friendly ear or want some help finding support services close to you. We exist as a charity to help connect those with MRKH together and improve awareness to help make this journey as supported as possible 🤍 #mrkh #mrkhempowerment #emotion #mrkheducation #infertility #diagnosis #journey #support #community #peersupport #mrkhwarrior #warrior #hope #youarenotalone #health #wellness #wellbeing #rokitanskysyndrome #mentalhealth #mentalhealthawarness
What is the 5000 in 50 challenge? Swipe ---> to fi What is the 5000 in 50 challenge? Swipe ---> to find out more. This challenge has been designed to be accessible and truly have something for all and it is open to EVERYONE. Whether you workout everyday or prefer to spend time wirh arts and craft, writing or gardening. The best thing about the challenge is you design what you want to do. The only thing we ask is that you help us reach our goal by contributing any time you can to help us reach our target. The challenge started on 5th May but you can join in anytime and be part of something truly special and be in with the chance to win some fantastic prizes from our sponsors! We have been so humbled to see your messages and share your posts and the amazing things you have all been up to whether you are an MRKHer or one of our friends and family supporters. Join us to help raise awareness and help us to shine a light on our amazing community through this novel event and fun challenges to help us come together ❤ Follow the link in our bio to join in and learn more! #mrkh5000in50 #mrkh #warrior #motivation #MRKHawareness #mrkhwarrior #fitness #wellness #wellbeing #hope #strength #mindful #community #support #1in5000 #challenge #journey #teamwork #strongertogether #infertility #rokitanskysyndrome #mrkhsyndrome
What is MRKH? Swipe ----> It is important to note What is MRKH? Swipe ----> It is important to note that everyone with MRKH has a different yet familiar story but that exactly how MRKH presents itself for you may differ to this image. A diagnosis of MRKH can be devastating and it also happens at an age when adult topics are thrown at us when we are still teenagers. It is impossible to describe that feeling but you are not alone even though it can feel like it. There is a big peer community accessible and ready to support wherever you are in your journey. A big part of what we do is connecting those with MRKH together whilst also raising awareness for the condition. If you would like to get involved, share your experience to help others or hear more about how you can support us please get in touch or follow the link in our bio to find out more. We love to hear from you. We are here 🤍 🎨 @designsbyduvetdays in collaboration with @mrkhconnect and @guerriereroki #mrkh #warrior #support #illustration #diagnosis #community #raisingawareness #mrkhwarrior #mentalhealth #wellbeing #wellness #infertility #mentalhealthawareness #art #diagnosis #rokitanskysyndrome #mrkhsyndrome #health #womenshealth #mrkheducation #mrkhempowerment
🤍 New research 🤍 === Reprofutures is a co 🤍 New research 🤍 === Reprofutures is a co-created research project which took place from 2019-2022 led by University of Exeter. Our objective was to understand what kinds of support that adults with variations in sex characteristics (VSCs) would like to receive with issues relating to reproduction, fertility, relationships, intimacy, and parenting (biological and non-biological). In particular, we aimed to consider how to improve the support provided in healthcare settings and social circles – from families, friends, partners – and to develop guidance to assist with these improvements. The understanding of reproductive support was broad and included the freedom not to become a parent, as well as the potential to become a parent, and in either case for the environment to be safe, healthy, approving, non-judgemental and non-intrusive. Together we developed a series of qualitative workshops, written activities, and consultation sessions with 28 people with VSCs across the UK including 6 people from the MRKH community. The conclusions from this work have been developed into a support guide, research report, and healthcare policy and practice recommendations and we have provided a link to these in our bio! #mrkh #dsd #health #research #journey #community #support #motivation #youarenotalone #mentalhealth #infertility #warrior #mrkhwarrior #mindful #mrkhempowerment #hope #mrkheducation #peersupport #1in5000 #positive #mrkhawareness #wellbeing #wellness
Sometimes we all need a reminder 🤍 An MRKH dia Sometimes we all need a reminder 🤍 An MRKH diagnosis can feel a lot like this. It can feel like being hit by a bus, it's a shock that can feel like we will never come to accept or feel at peace with. Sometimes it can even feel like it comes back to haunt us when we least expect it. But it can also bring opportunity too. Maybe that is a new perspective, a community, a different, but no less exciting, path. Or perhaps it is a new sense of strength and courage we could have never imagined. MRKH can still be part of us but not rule us. Who knows what life will throw at any of us but we are determined, as much as possible, to take strength from adversity and let those challenges grow with us and not against us 🎨 by @iuliastration 🤍 #wellness #warrior #mrkh #diagnosis #journey #health #mrkhawareness #coping #strength #courage #youarenotalone #mrkhwarrior #raisingawareness #1in5000 #normalisetheconversation #mrkhsyndrome #mrkheducation #mrkhempowerment #mrkhlife #gynaehealth #womanshealth #community #sexualhealth #mentalhealth #infertility #bodyempowerment #support #peersupport #community
Mindful colouring is about bringing our awareness Mindful colouring is about bringing our awareness into the present moment by consciously focusing on colour and design. It is a great way to relax and take time to de-stress. Life is busy and activities like this can be a great way to concentrate the mind on other activities that can also help us feel calm and be great for our wellbeing. As part of #mrkh5000in50 our community sponsor @mrkhstars have set us this challenge until the end of the month and designed their own MRKH inspired colouring sheets also incorporating the @beautifulyoumrkh logo (used with permission). There are some prizes up for grabs for all #mrkh5000in50 participants who take part and share their designs with us (via social media or directly). Why not have a go? If you want to share your designs on social media don't forget to tag @mrkhconnect @mrkhstars and use the hashtags #mrkh5000in50 #mindfulmrkh Download 1 or all 3 colouring sheets by following the link in our bio! Challenge open between 16th and 31st May. #mindfulmrkh #mentalhealth #art #mindful #mindfulart #arttherapy #mrkhwarrior #mrkh #warrior #hope #support #journey #mrkhempowerment #mrkheducation #1in5000 #community #rokitansky #strongertogether #teamwork #wellness #wellbeing #fitness
We have all done it at some point. Buried our fe We have all done it at some point. Buried our feelings in a hope of protecting ourselves or protecting others. It is not a long term solution. We might think it is, but it isn't. Its ok to have those feelings but facing them and processing them is important too. We can't even begin to move on until we do. Your pain is valid. Your grief is valid. Don't hide your feelings to help someone else feel better, including yourself. Your support network are there to help you, you are there to help you. They can't help if you don't let them in. #mrkh #grief #journey #community #motivation #support #youarenotalone #mentalhealth #infertility #warrior #mrkhwarrior #mindful #mrkhempowerment #hope #mrkheducation #peersupport #1in5000 #positive #health #mrkhawareness #wellbeing #wellness #WomensHealth #teamwork #strongertogether
We are so excited to have some creative fun this w We are so excited to have some creative fun this weekend with @femigami 💖 Will you join us? Find out more about this free 90minute workshop open to everyone, and its also a great way to log some activity hours for #mrkh5000in50, by following the link in our bio! These workshops are unique and fun - no prior experience necessary and all you will need are things you can find at home. #bodypositive #health #origami #art #warrior #raisingawareness #mrkh #mrkhwarrior #mrkhawareness #1in5000 #rokitanskysyndrome #mrkhsyndrome #mrkhempowerment #mrkheducation #mentalhealth #selfcare #support #community #infertility #fitness #YouAreNotAlone #health #womanshealth #wellness #wellbeing #journey #mindful #teamwork #strongertogether
🌟 ANNOUNCEMENT 🌟 MRKH Connect is growing an 🌟 ANNOUNCEMENT 🌟 MRKH Connect is growing and with more going on we needed to strengthen our team. We are delighted to have invited our dear friend, collaborator and MRKH advocate extraordinaire @ally__hensley to join our team. Ally will be known to many in our community but for those new here here is a little about this amazing human. Ally Hensley is a writer, speaker, and global ambassador in women’s health and happiness. She was the original co-founder of Australia’s first MRKH organisations, Sisters for Love and MRKH Australia and in 2016 co-founded Global MRKH, the first international consortium for MRKH organisations. The mission behind this international first, is to improve care and knowledge among healthcare professionals across the globe. Ally understands the importance of creating a safe, informed and inclusive space. With her knowledge, experience and purpose to connect the community with ‘hearty-humanness’, Ally is a complementary asset to our team and we are so delighted she said yes! MRKH Connect is a registered charity built on the mission of connecting those with MRKH together so no one feels alone. Our board of trustees oversee and guide the charity but we are community led and your inputs and engagement are a big part of what we do. There are many ways you can get in touch, be a part of and have your voice heard, through sharing your story, taking part in our initiatives or working with us on new ideas. Our door is always open ❤ #mrkh #teamwork #strongertogether #charity #journey #community #motivation #support #youarenotalone #mentalhealth #infertility #warrior #mrkhwarrior #mindful #mrkhempowerment #mrkheducation #peersupport #1in5000 #positive #health #mrkhawareness #wellbeing #wellness #WomensHealth
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