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Recent Posts

How 10 Years of Silence Led Me to Speak Up
World Childless Week 2020
Never give up on happiness
Working to lift my invisibility cloak
Community News: Beautiful You – The Journey of Disclosure event

mrkhconnect

How 10 years of silence led me to speak up - A, @m

How 10 years of silence led me to speak up - A, @mrkhsingapore 💛

'10 years of making sense of this condition, figuring out what my future will be like with MRKH and not talking about it as openly as I am not because I am afraid that I will make the people around me sad or uncomfortable'

We love this honest and open piece submitted to our blog page.

This is a blog page for the community. Here you can share your stories, experiences on any MRKH topic you wish.

Follow the link in our bio to check out the blogs submitted, ask us a question or send us your own 💛

Not yet a member? You can sign up using Join MRKH Connect on our website 💛

#mrkh #mrkhconnect #mrkhblog #blogger #blogging #journalling #MRKHawareness
#mrkhraisingawareness
#1in5000
#rokitanskysyndrome #empowerment #mrkhadvocacy #starttheconversation #mrkhsyndrome #mrkhempowerment #mrkheducation #mentalhealthawareness #mentalhealth #selfcare #support #MRKHcommunity #womenempowerwomen #diversity #fertility #infertility #fertilitymatters #ivf #adoption #childless

This is a lovely graphic piece for #mrkhandlockdow

This is a lovely graphic piece for #mrkhandlockdown from @memyselfandmrkh 💛

Laila was diagnosed just over a year ago yet over lockdown has found her voice and even started her own podcast (available on popular podcast platforms) - Me, Myself and MRKH - to share her experiences of MRKH and raise awareness of the condition and of infertility in general.

We particularly like this quote from her piece..

'I've actually had time to think for the first time ever and express myself as well as coming to terms with this diagnosis. This has been such a good opportunity for self discovery and disclosure'

Showing that despite the many challenges and sadness and even depression she felt at the start, lockdown has presented an opportunity. An opportunity to connect with the community and build her confidence to talk and share and disclose her own experiences and know she is not alone.

Thank you Laila!💛

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Do you have a #mrkhandlockdown story to share? This is an open initiative and we are taking submissions using any media from videos to blogs to soundbites or anything else in between.

Contact us contact more information 🙂

#mrkh #mrkhconnect #MRKHawareness
#mrkhraisingawareness
#1in5000
#rokitanskysyndrome #empowerment #mrkhadvocacy #starttheconversation #mrkhsyndrome #mrkhempowerment #mrkheducation #mentalhealthawareness #mentalhealth #selfcare #support #MRKHcommunity #womenempowerwomen #diversity #fertility #infertility #fertilitymatters #ivf #surrogacy #mindfulness #adoption #childlessness

⭐⭐Calling the UK MRKH Community ⭐⭐ Nation

⭐⭐Calling the UK MRKH Community ⭐⭐

National Fertility Awareness Week UK, or Fertility Week, is a week seeking to change perceptions, provide support and raise awareness and funds to support those struggling with fertility.

It usually culminates in the Fertility show which of course can't happen in person this year. Instead Fertility week, led by our friends at Fertility Network UK, will be packed with online resources, real stories and much much more, shining a light on different reasons and conditions that can affect fertility for men and women, including MRKH.

We are proud to be working with Fertility Network to provide inputs from the MRKH community and we need your help!

We are collating inputs on the themes of #fertilityandinequality and #mentalhealthmatters

We want to help give our community a voice as part of the bigger picture to raise awareness of the stigma, the taboo, the unfairness and the challenges we face.

We will be sharing up to 10 testimonials/quotes for each topic. Would you like to be involved? Submissions can of course be anonymous as well. Please send us a DM/email so we can share more details or answer any questions 💛

Follow the link in our bio to see more about the intention of this week 👆

#nfaw2020 #fertilityweek2020 #fertilityweek #fertilityawareness #fertilitymatters #fertility #infertility #youarenotalone #mrkh #MRKHawareness
#raisingawareness
#1in5000
#rokitanskysyndrome #empowerment #starttheconversation #mrkhempowerment #mrkheducation #mentalhealth #selfcare #support #womenempowerwomen #diversity #ivf #surrogacy #mindfulness #adoption #childlessness #ttc

In honour of World Childless Week what a great pos

In honour of World Childless Week what a great post by #tfl from their #allontheboard messages. A powerful message that so many of us can relate to and the grief that can come with it.

#fertility #infertility #mrkh #youarenotalone #kindnesstoothers #dontassume @world.childless.week

#Repost @allontheboard
• • • • • •
London, United Kingdom

This week is World Childless Week (14th -20th September 2020). @allontheboard
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#WorldChildlessWeek #Childless #childlessnotbychoice #WorldChildlessWeek2020 #allontheboard

We are super excited to be supporting this and the

We are super excited to be supporting this and there are many ways to get involved. More to come in the coming days of how you can be part of this years #nfaw2020 #fertilityweek raising awareness for #mrkh which is one of many fertility related conditions that will be represented as part of this week.

#mrkhawareness
#fertility #infertility

#Repost @fertilitynetworkuk
• • • • • •
Join us from 2nd - 5th November for National Fertility Awareness Week. #YouAreNotAlone
#FertilityInequalities #MentalHealthMatters #MenMatter #FertilityEducation

Today we are thankful to have the chance to reigni

Today we are thankful to have the chance to reignite a charity and move into a new era.  MRKH Connect has always had a mission to connect those with MRKH together, it’s a facilitator, a friendship builder and a community resource.  But the reason for these changes is the team behind Connect and we want to take the chance to introduce you to them.

A team that is passionate and motivated and collectively builds on the basis the charity founders laid since 2014.

First up is our Director Charlie.  Many of you know her already but what inspired @charlieabishop to get involved with MRKH Connect in the first place?

Charlie met Kelly, the charity’s founder, in 2015 through a support group in London and after some challenging times of her own she decided she needed a new focus.  She started a blog and embarked on a challenege to raise awareness for MRKH and chose to raise funds for MRKH Connect.

She joined the Connect team as a Trustee back in 2017. In 2019 she was offered the chance to take over as Director. One that she jumped at.

Day to day though her life is a bit different....

She is a geoscientist with an analytical brain that lives in Northern Norway and works as a project manager interpreting satellite imagery (something she describes as ‘super cool’) yet her passion for a number of years has been to help support the community which has helped her, by helping others.

'To dare is to do' and Charlie is a doer. She is a runner, a blogger and a self confessed satellite nerd as well as a fierce advocate for MRKH.

She worked with the founders to build on their vision and was inspired to develop campaigns such as #letsconnect to bring the community together as well as working to help support, promote, engage with the community and her peers, always with the goal to improve support for those with MRKH and their families. Wherever they are.

#youarenotalone #thankfulthursday #mrkh #blogger
#mrkhawareness
#1in5000 #empowerment
#rokitanskysyndrome #mrkhsyndrome #mrkhempowerment #mrkheducation #mentalhealthawareness #mentalhealth #selfcare #support #MRKHcommunity #womenempowerwomen #diversity #fertility #infertility #fertilitymatters #selflove #advocacy

Our @charlieabishop wrote a piece about dilation a

Our @charlieabishop wrote a piece about dilation as part of a @shwomenstore initiative raising awareness of dilation as part of #vaginisimus awareness day which is 15th September (tomorrow 🙌) and go some way to help #breakthestigma ❤

Dilation is not shameful yet for those of us that follow that path it can often feel like that because it's a taboo subject to discuss and it can feel embarrassing to try.

We want to help break down those walls and help #raiseawareness and #starttheconversation

You can also find the link in our bio! 👆

#Repost @shwomenstore
• • • • • •
M R K H • Huge Thanxx to the lovely Charlie of @mrkhconnect for sharing her experience of making a vagina 💕 Read the full post here: http://www.vaginismusawareness.com/blog/my-story-i-made-my-vagina

MRKH (Mayer-Rokitansky-Küster-Hauser) Syndrome is a congenital condition (present at birth) that affects around 1 in 5000 women.

MRKH is a disorder of reproductive development leading to the absence of the uterus, cervix, and the shortening of the vagina.

The presence of ovaries produce female hormones that lead to breasts and pubic hair developing. However, the absence of the uterus means that periods don’t start, which is usually the first sign investigated by a local doctor or physician. Most will then usually be referred to see a specialist in gynaecology, where they are likely to undergo a pelvic ultrasound or MRI scan, to confirm the diagnosis.

There are two types of MRKH: Type 1 is the most common as identified by the characteristics above. Of those with Type 2 MRKH, 40% will have differences in the development of their kidneys (e.g. 15% have one kidney), 10% may have bone changes and another 10% may experience hearing difficulties. (From MRKH Connect website).

#MRKH and #Vaginismus are not the same thing, but dilation can be part of treatment for both conditions. The more we speak about these conditions, the more we normalise it and break the isolation 💕
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#Health #HealthAndWellness #WomensHealth #VaginismusAwarenessDay #VaginalHealth #VaginalHealthMatters #VaginaCare #VaginaLove #mayerrokitanskyküsterhausersyndrom #MRKHConnect #SundayThoughts #Dilation

⭐ New blog post ⭐ So the Pope didn't write us

⭐ New blog post ⭐

So the Pope didn't write us a blog but we found this wonderfully inspiring piece and the words struck us as something so many can relate to so we had to share.

We can learn so much from life. From the good and the bad and it can help us become stronger, more courageous and more resilient even if the path to get there takes longer than we hope. Patience is key. Never give up.

Follow the link in our bio to check out our blogs or why not submit your own?

This is a blog page for all. Here you can share your stories, experiences, advice etc. You dont have be a seasoned writer, maybe you have never written before or you haven't for a while.

We are always here to answer questions, provide advice, help and support ❤

#mrkh #mrkhblog #blogger #blogging #journalling #happiness
#mrkhraisingawareness
#1in5000
#rokitanskysyndrome #empowerment #mrkhadvocacy #starttheconversation #mrkhsyndrome #mrkhempowerment #mrkheducation #mentalhealthawareness #mentalhealth #selfcare #support #MRKHcommunity #womenempowerwomen #diversity #fertility #infertility #fertilitymatters #ivf #surrogacy #mindfulness #adoption #childlessness

We are so delighted to see the empowerment of MRKH

We are so delighted to see the empowerment of MRKH women during these uncertain times and how lockdown has helped them reflect and reconnect with themselves, their friends, family and community in a way they hadn't before.

⭐Meet Geepies ⭐

She has written a blog for our #mrkhandlockdown initiative that we think will resonate with many. Here is just a taster of this lovely piece ❤

"My main reason for writing this blog is to try to say to my MRKH sisters, both existing, and who I haven't met yet, that I think of you often. You have helped me so much and in lockdown I've been able to use my learning in new ways to support others...

...I want you guys to know that I'm trying to pay forward the kindness and support I've been fortunate enough to receive"

You can read this full post by following the link in our bio 👆

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Do you have a #mrkhandlockdown story to share? This is an open initiative and we are taking submissions using any media from videos to blogs to soundbites or anything else in between.

Contact us contact more information 🙂

#mrkh #mrkhconnect #MRKHawareness
#mrkhraisingawareness
#1in5000
#rokitanskysyndrome #empowerment #mrkhadvocacy #starttheconversation #mrkhsyndrome #mrkhempowerment #mrkheducation #mentalhealthawareness #mentalhealth #selfcare #support #MRKHcommunity #womenempowerwomen #diversity #fertility #infertility #fertilitymatters #ivf #surrogacy #mindfulness #adoption #childlessness #youarenotalone

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