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Recent Posts

Fertility Week 2020 is round the corner!
New book by infertility advocate Prof Cristina Archetti
Reflecting on Disclosure
MRKH Connect launches Connect with Friends
How 10 Years of Silence Led Me to Speak Up

mrkhconnect

We are getting excited for Fertility Week next wee

We are getting excited for Fertility Week next week and have a lot of exciting things to share!

In the meantime we will let this fabulous quote speak for itself.

There are lots of ways to interact during the week through events @fertilitynetworkuk and others have set up and watch out for some fantastic MRKH awareness during the week!

Fun fact: a pineapple is often used as a sign of fertility and hope but do you know why? Well they are known to boost immune system that may aid fertility BUT more than that they are the reproductive organ of the plant they grow from. We think that is pretty darn cool🍍🍍🍍

#nfaw2020 #fertilityweek #fertilityweek2020 #mrkh #mrkhconnect #MRKHawareness
#mrkhraisingawareness
#1in5000
#rokitanskysyndrome #starttheconversation #mrkhsyndrome #mrkhempowerment #mrkheducation #mentalhealthawareness #mentalhealth #selfcare #support #MRKHcommunity #womenempowerwomen #diversity #fertility #infertility #fertilitymatters #fertilityinequality #selfcare #selflove #bekindtoyou
#YouAreNotAlone
#sexualhealth #health #womanshealth

We recently saw this post by @girlwithmrkh and tho

We recently saw this post by @girlwithmrkh and thought it was a lovely piece sharing her personal experiences during lockdown whilst also reflecting on the wider impact to many in our community and beyond. We thought that it would resonate with many and we asked if she would mind if we shared it as part of our #mrkhandlockdown initiative and she said yes 🙌

Lockdown has challenged every part of what we think of as 'normal' so it is natural that these last few months will have been a bit strange.

"As someone who is already 32 years old, lives with her long-term boyfriend, has aspirations to be married and start a family one day – but also has MRKH, the anxiety is real"

We know the future is different for all of us. For some it may hold children and for some it doesn't but (in the words of our blogger Claire)...

"It’s a challenging time for many, and we can only continue to do our best and take things one step at a time. For other MRKHers who are going through a difficult time due to the pandemic: I hear you. I see you. You are not alone"

Read the full piece on our page and why not follow her page/blog for more?

❤

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Do you have a story to share? It is not too late! We are still taking submissions to this open initiative using any form of media from videos to blogs to soundbites or anything else in between. Check out the submissions so far by clicking on the link in our bio

#mrkh #mrkhconnect #MRKHawareness
#mrkhraisingawareness
#1in5000
#rokitanskysyndrome #starttheconversation #mrkhsyndrome #mrkhempowerment #mrkheducation #mentalhealthawareness #mentalhealth #selfcare #support #MRKHcommunity #womenempowerwomen #diversity #fertility #infertility #fertilitymatters #ivf #afoption #childless #selfcare #selflove #bekindtoyou
#YouAreNotAlone
#sexualhealth #health #womanshealth

What a great first Connect with Friends full of la

What a great first Connect with Friends full of laughter and great hairstyles and just relaxed conversation. It was like we were all in a room together!

If you missed out this time or want to join us next time then save the date for the next one on 9th December! More details to follow ❤

#mrkh #connectwithfriends #selfcaresunday #community
#1in5000 #support #supportnetwork
#rokitanskysyndrome #starttheconversation #mrkhsyndrome #mrkhempowerment #mrkheducation #mentalhealthawareness #mentalhealth #selfcare #support #MRKHcommunity #womenempowerwomen #diversity #fertility #infertility #fertilitymatters #selfcare #selflove #bekindtoyou
#YouAreNotAlone
#sexualhealth #health #womanshealth

We are excited for our first Connect with friends

We are excited for our first Connect with friends tomorrow at 7pm GMT

This regular catch up series will be a mix of informal chats, guest hosts, speakers and creative events. Join Charlie, Hasna, Katie, Ellamae and Vics as we kick things off tomorrow with our first informal chat and get together. Totally relaxed no pressure and just a nice way to catch up with old friends or perhaps make some new ones ❤

Those who registered will recieve your logins today via email. If you weren't able to sign up for this one Save the Date of December 9th for the next one!

Get in touch if you have any questions

Note: the original time said BST but the clocks change in the UK overnight and we admit we forgot it was this weekend! 🕑

#mrkh #mrkhconnect #connectwithfriends #mrkhawareness #raisingawareness #1in5000 #mrkhwarrior #rokitanskysyndrome #starttheconversation #mrkhsyndrome #mrkhempowerment #mrkheducation #mentalhealthawareness #mentalhealth #selfcare #support #womenempowerwomen #diversity #fertility #infertility #fertilitymatters #selflove #bekindtoyou #youarenotalone #sexualhealth #health #womanshealth #womensupportingwomen #supportnetwork

2020...well...where do we even begin??? As lockd

2020...well...where do we even begin???

As lockdowns are reinstated for many of us we have been reflecting on some incredible personal experiences despite the challenging times we are all being faced with. You can check out these powerful pieces by following the link in our bio!

We started this multimedia campaign to capture the diversity of our experiences, positive and negative, and collate and share them, shining a light on how lockdown has shaped our community. We have been overwhelmed with these powerful pieces but this is an open initiative. Do you have something you would like to share?

⭐Have you had treatment cancelled?
⭐Hospital appointments postponed?
⭐How have you felt during this time?
⭐Has being in lockdown changed how you feel about MRKH?
⭐Has it given you a new focus?
⭐Has it led to new opportunities?
⭐Has it given you more time with family in a way you didn't have before?

We want to hear from you and encourage you to share your experiences through a
1. 1 minute video clip
2. 1 minute sound bite
3. 500 word blog post
4. Poem
5. Or any other media you can think of 💛

These posts will be made public on our social media and website and as such your comfort in sharing is our priority. We know sharing isn't always easy. If you wish to remain anonymous or use a pseudonym that is no problem 💛

If you are interested please send us a DM and we can send you more details and how to submit!

#mrkhandlockdown #mrkh #mrkhconnect #MRKHawareness
#mrkhraisingawareness
#1in5000
#rokitanskysyndrome #starttheconversation #mrkhsyndrome #mrkhempowerment #mrkheducation #mentalhealthawareness #mentalhealth #selfcare #support #womenempowerwomen #diversity #fertility #infertility #fertilitymatters #ivf #afoption #childless #selfcare #selflove #bekindtoyou
#YouAreNotAlone
#sexualhealth #health #womanshealth #lockdown

Continuing our team introductions next up is Adrie

Continuing our team introductions next up is Adrienne - what does she bring to our team?

Adrienne is a mum. In fact not just any mum, she is an MRKH mum and even more than that she is Charlie’s mum.

Finding out your teenage daughter has MRKH is not easy.  As parents they felt at a loss as to how to support someone going through something so big so young.  They wished there had been more information for parents during this time to help them understand how to support Charlie and this is a big part of why Adrienne jumped at the chance to be part of MRKH Connect team.

Adrienne is an extremely practical woman, terribly organised and motivated (having done a law degree for fun in her 40s).  Now in semi-retirement with Charlie’s dad they enjoy a relaxed life in the Kent countryside.  A dog lover and a staunch supporter of everything her children do, Charlie asked if she would like to join the Connect team and she keeps us in check whilst providing valuable inputs to help us as we plan our future activities and help us prepare important resources for family and friends of those with MRKH (soon to be released on the site).

As a family it had always been a difficult topic for us to discuss and share how we were feeling but being part of the team helps her and Charlie connect on a different level and appreciate how things have changed over time and how open we are as a community, and the strength and courage within it, to find support and friendship in times of adversity.

#mrkh
#raisingawareness
#1in5000 #support
#rokitanskysyndrome #empowerment #mrkhadvocacy #starttheconversation #mrkhsyndrome #mrkhempowerment #mrkheducation #mentalhealthawareness #mentalhealth #selfcare #support #MRKHcommunity #womenempowerwomen #diversity #fertility #infertility #fertilitymatters #ivf #adoption #childless #selfcare #selflove #bekindtoyou
#YouAreNotAlone
#sexualhealth #health #womanshealth #family

Have you signed up yet for our first #connectwithf

Have you signed up yet for our first #connectwithfriends on 25th October?

This first event will be a relaxed get together and chance to catch up with mrkh friends old and new.

Registration is still open until Friday 23rd and zoom details will be sent to all registrants soon after.

We can't wait to launch this new regular catch up with the community which is open to all with MRKH. This series will have a mix of informal catch ups, community guest hosts, creative sessions and guest speakers.

We have lots to come!

Follow the link on our bio
We hope to see you there! ❤

#mrkh
#raisingawareness
#1in5000 #support
#rokitanskysyndrome #empowerment #mrkhadvocacy #starttheconversation #mrkhsyndrome #mrkhempowerment #mrkheducation #mentalhealthawareness #mentalhealth #selfcare #support #MRKHcommunity #womenempowerwomen #diversity #fertility #infertility #fertilitymatters #ivf #adoption #childless #selfcare #selflove #bekindtoyou
#YouAreNotAlone
#sexualhealth #health #womanshealth

Whether you have MRKH or not it is not unusual for

Whether you have MRKH or not it is not unusual for many of us to feel diminished in society if we don't have children. Whether it is not for want of trying, circumstance or by choice, it doesnt matter. Today we are thankful for raising awareness and challenging society perceptions

We came across this article by @elizabday from @youmagazine and it resonated.

"We are not 'less' if we don't have children, whatever reason that leads us there. MRKH challenged my own family ideals, it drove me to explore IVF Surrogacy yet left me feeling penalised for having a condition I could do nothing about. My life changed dramatically and so did my perceptions. I may not have a child of my own but feel incredibly lucky to be god mother to 4 wonderfully unique children and 'auntie Charlie', 'Chatty' or Charlotte to others. I don't need anything more in that regard" - Charlie, Director, MRKH Connect

Read Elizabeth's full article by following the link in our bio and keep an eye out for Charlie's blog sharing her experiences in a couple of weeks time!

Do you have a story to share on this topic? We would love to hear from you!!! ❤

#mrkh #mrkhawareness #advocacy #empowerment #womenshealth #health #stigma #mentalhealth #bodypositive #sexualhealth #raisingawareness
#1in5000 #rokitanskysyndrome #mrkhadvocacy #mrkhsyndrome #mrkhempowerment #mrkheducation #mentalhealth #selfcare #support #diversity #fertility #infertility #fertilitymatters #ivf #adoption #childless #childblessed #selfcare #selflove #bekind
#YouAreNotAlone

Art can be so therapeutic and this fantastic selec

Art can be so therapeutic and this fantastic selection from Stephanie was part of her exploration to find an outlet during lockdown.

Why not read more about how an offhand comment by her therapist led her to buying a paint set and embarking on a different way to express her emotions during lockdown. Follow the link in our bio!👆

Thank you Stephanie and keep it up...we think they are beautiful! ❤

===

Do you have a #mrkhandlockdown story to share? It is not too late! We are still taking submissions to this This open initiative using any form of media from videos to blogs to soundbites or anything else in between.

Contact us contact more information 🙂

#mrkh #MRKHawareness
#raisingawareness
#1in5000
#rokitanskysyndrome #empowerment #mrkhadvocacy #starttheconversation #mrkhsyndrome #mrkhempowerment #mrkheducation #mentalhealthawareness #mentalhealth #selfcare #support #MRKHcommunity #womenempowerwomen #diversity #fertility #infertility #fertilitymatters #ivf #adoption #childless #selfcare #selflove #bekindtoyou #youareenough
#YouAreNotAlone #arttherapy

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