Following Betty’s moving and courageous explanation of her MRKH journey during the latest season of BBC’s Race Across the World, awareness of this condition that impacts 1 in 5000 women, has never been higher and MRKH Connect, the flagship charity and peer support hub, will look to build on this momentum at their 10th Annual Live event in July.

MRKH (Mayer-Rokitansky-Küster-Hauser) Syndrome, a congenital condition which effects 1 in every 5,000 female births, according to the NHS. It mainly affects the reproductive system, where the vagina, cervix and uterus are absent or underdeveloped. This life-altering and traumatic diagnosis, is a congenital abnormality, meaning it is something people are born with – although most are not diagnosed with it until their teenage years.

Leading the campaign to raise awareness of MRKH, is MRKH Connect, the UK’s flagship charity and peer support hub. MRKH Connect, does exactly that, connects those with Mayer Rokitansky Küster Hauser (MRKH) syndrome together, wherever they are in the world, to ensure no one with MRKH feels alone whilst also providing support to them and their families and promoting awareness to medical professionals and the public.

This year, MRKH Connect celebrates their 10th year at the helm of MRKH advocacy, hosting a powerful curated event to celebrate our MRKH community, their biggest milestones in UK and global advocacy, and most importantly, the MRKH community. This London based event, Connect LIVE, is an in-person community led event, featuring speakers from across our community.

With international speakers, including Director and Writer of ‘Fitting In’, the worlds first ever film about MRKH, leading actress and film star, Maddie Ziegler, a blended panel of those with MRKH, partners and friends, and inspirational personal accounts Connect Live is set to be a stand-out occasion, celebrating diversity, inclusion and women’s health across generations.

With the MRKH digital landscape ensuring worldwide coverage, Connect LIVE is taking place at London’s Curzon Cinema, Victoria – where MRKH is hitting the big screen in one of the most profound years of MRKH activism and media exposure.