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Recent Posts

  • Hidden in plain sight
  • MRKH Day 2026 Rotunda Hospital, Ireland – 20th November
  • Connect and Support – 22nd Sept 2026
  • Youth Program 2026 – from 9th September
  • Connect With Friends – 6th Sept 2026

mrkhconnect

MRKH Connect is a charity with a mission to connect those with MRKH all over the world. No one should feel alone, we are 1 in 5000 #mrkhempowerment ❤️
Two months ago, we asked our community to write fo Two months ago, we asked our community to write for us and share a submission based on the theme: A day in my life as a person with MRKH. ❤️ We are super excited to share our third submission: an insightful essay explaining the relationship between a mother and daughter navigating an MRKH diagnosis. ✨ An essay by Natasha Rohrs, titled: MRKH, My Mom and Me. “It’s hard to know what my diagnosis even means to me after decades of performing. What would I say if I wasn’t afraid? Who would I become? MRKH has been the same story of invisible grief for so long that I wasn’t even sure who wrote it for me, or where it came from. Therein lies the danger of a single story. Living with the emotional gymnastics of MRKH has always meant coexisting with the unsaid, but I realised MRKH also revealed the incomplete truths we all negotiate with as women. MRKH is a lifelong diagnosis that changes daily, with emotional wounds that are uniquely social and always evolving. Sometimes it’s as fragile as the pauses between two people that feel like the same old story, and sometimes, like today, it’s the grief that becomes divided when it’s shared between a mother and daughter, telling a new story.”✨ Thank you so much, @sasha.rohrs , for your raw honesty, transparency, unwavering vulnerability, and for explaining how complex MRKH can be between parent and child. This essay will invite many conversations, thoughts, and hopefully, offer up a permission slip for people to have the hard conversations at home. 💖 #mrkh
What could you learn? After running our Youth Pr What could you learn? After running our Youth Program for 4 years now we love hearing the feedback from participants. What they takeaway the support they have felt and importantly the areas where there are always more we could do. This program is for you. A safe space to come together, learn from each other, ask those questions and find tools for your journey. This program my surprise you, so many who have joined over the years said they weren't sure what to expect but how valuable it has been. This program is... 🤍Peer led and runs online 🤍Small group, relaxed and informal 🤍Designed to help young MRKHers move towards a better acceptance of MRKH 🤍An opportunity to develop strategies to help process your journey 🤍Focused on wellbeing whilst making new connections and friendships in a supported space. Run by young MRKHers for young MRKHers aged 18-25* 🤍 Final call for our next Youth Program set starting soon! Find out more by following the link below: https://mrkhconnect.co.uk/youth-program-2026-from-9th-september/ #mrkh #hope #journey #community #support #friendship #mrkhempowerment #mrkheducation #peersupport #warrior #infertility #mrkhyouthprogram #strongertogether
What @pink said! ❤️ We’re here! 🔥 #MRKH What @pink said! ❤️ We’re here! 🔥 #MRKH
Are you supporting someone with MRKH? Have you be Are you supporting someone with MRKH? Have you been looking for a space to meet and chat with others, share experiences and come together? We know our supporters need support as much as we do so why not join us for our first Connect and Support. Just for our supporters (e.g. parents, partners, friends). An event facilitated by supporters for supporters. Our first online Connect and Support event is on 22nd September at 7pm BST (UK time) and is run by our Friends and Family team, led by Shelley. These events are designed to be relaxed and informal with the chance to chat and share, or just listen in, no pressure 💛 All are welcome wherever you are in the world and wherever your MRKH is on their journey. We hope to see you there 🤍 Follow the link to Events in our bio to register. #mrkhconnectandsupport #mrkhawareness #mrkh #hope #mentalhealth
✨️Still time to participate✨️ The research team a ✨️Still time to participate✨️ The research team at Texas Children’s Hospital - Baylor College of Medicine led by Dr. Niccolo Passoni have been overwhelmed with the responses so far with some themes coming through that are incredibly valuable for how to better approach care but they would love more feedback. If you haven't participated yet but have a few minutes to spare please do follow the link to the anonymous survey. As a reminder the team are conducting a study focused on understanding the lived experiences, psychosocial needs, and support preferences of individuals with Mayer-Rokitansky-Küster-Hauser (MRKH) syndrome. They are currently distributing an anonymous survey designed to better understand: ✨️Experiences surrounding MRKH diagnosis ✨️Interactions with healthcare providers ✨️Access to emotional, psychological, and educational support ✨️Experiences with peer and support-group engagement ✨️Patient perspectives on unmet needs and future resource development Follow the link in our bio to "News" to find out more or follow the link https://tinyurl.com/348nrrb9 We believe in the value of research to better understand, inform and improve services/offerings available to our community and beyond which is where we believe research topics like this may be of interest. #mrkh #infertility #research #community #mrkhempowerment #mrkheducation #health
I'M OK is a project encouraging individuals to tal I'M OK is a project encouraging individuals to talk about their emotional wellbeing and mental health experiences in their own words whilst telling their story through their portraits. This project has never before focused on just one condition and this is why this collaboration is so special. We all know that mental health impact is often under represented and supported so this project refocuses our attention on the impact MRKH has on our mental health and emotional wellbeing in our own words unfiltered, unscripted, unreleased. Whether you are living with MRKH or supporting someone with MRKH and wherever you are in the 🌎, we invite you to share with us only if you feel comfortable to do so. There are so many ways to approach your submission and no right or wrong way to share your picture or story. Check out the full gallery linked in our Bio. We would love to share yours 💜 #mrkh #warrior #mentalhealth #mrkhempowerment #hope
Recently, we asked our community to write for us a Recently, we asked our community to write for us and share a submission based on the theme: A day in my life as a person with MRKH. ❤️ We are super excited to share our second submission: a straight-talking, courageous, hearty, and soul-moving essay. ✨ An essay by Niamh Asple, titled: MRKH: Beyond the Diagnosis & the Journey to Belonging “I didn’t think the menstrual cycle had anything to do with me… yet it turned out to be the key to my healing. I was diagnosed with MRKH when I was 16. My Mum sobbed as the doctor shared the news, and I found myself comforting her while trying to understand what it actually meant for me. I won’t deny there was an initial sense of relief. I wouldn’t have the monthly “curse” my friends talked about. I wouldn’t experience the pain some of them suffered. I wouldn’t have to worry about getting pregnant, the fear of every teenage girl. And I’d no longer have to endure the embarrassment of my mum stuffing tampons in my bag every time I was going anywhere. Phew! But as the relief subsided, another reality slowly dawned… I was different. I wasn’t like the other girls.” We highly encourage you to scroll, save, and share. This is such a powerful read. @niamhasple , thank you for pouring your heart and bravery onto the page. Our community is stronger because of your courage, expression, and insights. 💖 #mrkh
Could the MRKH Youth Program be for you? Coming Could the MRKH Youth Program be for you? Coming together in a safe space to learn from each other and find tools for our journey can be so meaningful but don't just take our word for it see some of the feedback from individuals who have been part of this program recently. This program my surprise you, so many have joined said they weren't sure what to expect but how valuable it has been. It is a relaxed way to meet others in a small group setting, online. This program is... 🤍Peer led and runs online 🤍Small group, relaxed and informal 🤍Designed to help young MRKHers move towards a better acceptance of MRKH 🤍An opportunity to develop strategies to help process your journey 🤍Focused on wellbeing whilst making new connections in a safe space. Run by young MRKHers for young MRKHers aged 18-25* 🤍 Our next program will start on 9th September and runs every Wednesday evening for 6 weeks. Find out more by following the link below, in our bio or drop us a 💜 below and we can have a chat! https://mrkhconnect.co.uk/youth-program-2026-from-9th-september/ #mrkh #hope #journey #community #support #friendship #mrkhempowerment #mrkheducation #peersupport #warrior #infertility #mrkhyouthprogram #strongertogether
Join us for our next online peer support group Con Join us for our next online peer support group Connect with Friends on Sunday 6th September 7pm BST (UK time) These events are designed to be relaxed and informal with the chance to chat and share, or just listen, no pressure, with friends old and new💛 As with all our Connect with Friends this is only for those with MRKH and all MRKHers over 16 are welcome regardless of where you are in your journey. We hope to see you there 🤍 Follow the link in our bio to Events to register. #peersupport #mrkh #community #hope #mentalhealth
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