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Recent Posts

  • Reflecting on Disclosure
  • MRKH Connect launches Connect with Friends
  • How 10 Years of Silence Led Me to Speak Up
  • World Childless Week 2020
  • Never give up on happiness

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Have you signed up yet for our first #connectwithf Have you signed up yet for our first #connectwithfriends on 25th October? This first event will be a relaxed get together and chance to catch up with mrkh friends old and new. Registration is still open until Friday 23rd and zoom details will be sent to all registrants soon after. We can't wait to launch this new regular catch up with the community which is open to all with MRKH. This series will have a mix of informal catch ups, community guest hosts, creative sessions and guest speakers. We have lots to come! Follow the link on our bio We hope to see you there! ❤ #mrkh #raisingawareness #1in5000 #support #rokitanskysyndrome #empowerment #mrkhadvocacy #starttheconversation #mrkhsyndrome #mrkhempowerment #mrkheducation #mentalhealthawareness #mentalhealth #selfcare #support #MRKHcommunity #womenempowerwomen #diversity #fertility #infertility #fertilitymatters #ivf #adoption #childless #selfcare #selflove #bekindtoyou #YouAreNotAlone #sexualhealth #health #womanshealth
Whether you have MRKH or not it is not unusual for Whether you have MRKH or not it is not unusual for many of us to feel diminished in society if we don't have children. Whether it is not for want of trying, circumstance or by choice, it doesnt matter. Today we are thankful for raising awareness and challenging society perceptions We came across this article by @elizabday from @youmagazine and it resonated. "We are not 'less' if we don't have children, whatever reason that leads us there. MRKH challenged my own family ideals, it drove me to explore IVF Surrogacy yet left me feeling penalised for having a condition I could do nothing about. My life changed dramatically and so did my perceptions. I may not have a child of my own but feel incredibly lucky to be god mother to 4 wonderfully unique children and 'auntie Charlie', 'Chatty' or Charlotte to others. I don't need anything more in that regard" - Charlie, Director, MRKH Connect Read Elizabeth's full article by following the link in our bio and keep an eye out for Charlie's blog sharing her experiences in a couple of weeks time! Do you have a story to share on this topic? We would love to hear from you!!! ❤ #mrkh #mrkhawareness #advocacy #empowerment #womenshealth  #health  #stigma #mentalhealth #bodypositive #sexualhealth #raisingawareness #1in5000 #rokitanskysyndrome #mrkhadvocacy #mrkhsyndrome #mrkhempowerment #mrkheducation #mentalhealth #selfcare #support #diversity #fertility #infertility #fertilitymatters #ivf #adoption #childless #childblessed #selfcare #selflove #bekind #YouAreNotAlone
Art can be so therapeutic and this fantastic selec Art can be so therapeutic and this fantastic selection from Stephanie was part of her exploration to find an outlet during lockdown. Why not read more about how an offhand comment by her therapist led her to buying a paint set and embarking on a different way to express her emotions during lockdown. Follow the link in our bio!👆 Thank you Stephanie and keep it up...we think they are beautiful! ❤ === Do you have a #mrkhandlockdown story to share? It is not too late! We are still taking submissions to this This open initiative using any form of media from videos to blogs to soundbites or anything else in between. Contact us contact more information 🙂 #mrkh #MRKHawareness #raisingawareness #1in5000 #rokitanskysyndrome #empowerment #mrkhadvocacy #starttheconversation #mrkhsyndrome #mrkhempowerment #mrkheducation #mentalhealthawareness #mentalhealth #selfcare #support #MRKHcommunity #womenempowerwomen #diversity #fertility #infertility #fertilitymatters #ivf #adoption #childless #selfcare #selflove #bekindtoyou #youareenough #YouAreNotAlone #arttherapy
Today is #worldmentalhealthday and this year the t Today is #worldmentalhealthday and this year the theme is Mental Health For All. This could not be more apt after the challenges of this year. On average 1 in 4 people will be affected by some form of mental health challenge at some point in their lives. The causes can be many and varied. Whether you choose to speak to friends, family or a professional, or all of the above, is up to you but know that you are not alone and there is support available. Please reach out any time if you need support #MentalHealthMatters #mrkh #MRKHawareness #raisingawareness #1in5000 #rokitanskysyndrome #empowerment #mrkhadvocacy #starttheconversation #mrkhsyndrome #mrkhempowerment #mrkheducation #mentalhealthawareness #mentalhealth #selfcare #support #diversity #fertility #infertility #fertilitymatters #selfcare #selflove #bekindtoyou #youareenough #YouAreNotAlone #youareworthy #bekindtoyourmind #bekind
As we continue to introduce the team we get to Dr As we continue to introduce the team we get to Dr Michelle Lipton, psychologist extraordinaire! As a Clinical Psychologist at the Centre for Disorders of Reproductive Development and Adolescent Gynaecology at Queen Charlotte’s and Chelsea Hospital (QCCH), Imperial College Healthcare NHS Trust, Michelle provides psychological support for many women diagnosed with MRKH. So when Charlie approached her to be a Trustee of MRKH Connect, it was a “no brainer”. Social support is invaluable in a diagnosis like MRKH. Connecting with others who understand the impact of a condition that many people have not heard of helps girls and women feel less isolated, less overwhelmed and enables them to normalise their experience of having MRKH. Over a decade working as a Clinical Psychologist at QCCH, she has witnessed the significant change that social media has had on helping women adjust to a diagnosis of MRKH. An ever increasing number of inspiring individuals living with MRKH have created access to support through websites, groups formed on social media sites and an array of written, audio and video blogs. These support platforms have enabled women to make sense of their diagnosis, have empowered them to make positive changes in their lives and have seemingly shifted women’s often negative views about what it means to have MRKH. “I am proud to be a part of MRKH Connect and what it represents. Thank you to the founders Kelly, Janet and to Charlie for making this happen”. ...and we are so happy to have you on the team, your guidance and advice is invaluable #mrkh #MRKHawareness #raisingawareness #1in5000 #rokitanskysyndrome #empowerment #mrkhadvocacy #starttheconversation #mrkhsyndrome #mrkhempowerment #mrkheducation #mentalhealthmatters #mentalhealthawareness #mentalhealth #selfcare #support #MRKHcommunity #womenempowerwomen #diversity #fertility #infertility #fertilitymatters #ivf #adoption #childless #selfcare #selflove #bekindtoyou #youareenough #YouAreNotAlone #youareworthy
Inspired by the excellent recent @beautifulyoumrkh Inspired by the excellent recent @beautifulyoumrkh #disclosure event the lovely Geepies wrote us a blog and it's a wonderful piece sharing her experiences of disclosure and the power the community has to help support, inspire and motivate ourselves. If we choose tell our own unique stories we should always do so in our own time and in our own way. "Gradually I’ve opened up to a small number of friends for one of two reasons: (1) to help them in a difficult situation they’ve been dealing with or (2) because I’ve wanted them to know me better. And you know what? Nothing bad happened! These people are still my friends, they still care about me; they just happen to know a little bit more about me. One of the many wonderful things about the disclosure event was the diversity of experiences. There is no single way to experience, handle or disclose (or not) MRKH. We are unique in every sense and that’s what makes us all the more beautiful and special" === We have a blog page for the community. Here you can share your stories, experiences on any MRKH topic you wish. Follow the link in our bio to check out the blogs submitted, ask us a question or send us your own 💛 Not yet a member? You can sign up using Join MRKH Connect on our website 💛 #mrkh #mrkhconnect #mrkhblog #blogger #blogging #journalling #MRKHawareness #mrkhraisingawareness #1in5000 #rokitanskysyndrome #empowerment #mrkhadvocacy #starttheconversation #mrkhsyndrome #mrkhempowerment #mrkheducation #mentalhealthawareness #mentalhealth #selfcare #support #MRKHcommunity #womenempowerwomen #diversity #fertility #infertility #fertilitymatters #ivf #adoption #childless
Lockdown has brought with it uncertainty, doubt an Lockdown has brought with it uncertainty, doubt and sadness yet through all of these understandable negative consequences there has been an abundance of strength, courage and motivation. Time to do more, to consider more or to challenge ourselves. @charlieabishop shares with us an insight into her experiences in lockdown and the importance she has found in support. Support for herself, for family & friends and, more importantly, for each other and finding new ways to access that support when meeting in person is not possible.  "No one should feel alone yet lockdown instantly makes us think of loneliness. I chose lockdown to really find a new and positive way to work to change that and share some of that love and support to those who have found this time so much harder for so many reasons" ==== Do you have a #mrkhandlockdown story to share? It is not too late! We are still taking submissions to this This open initiative using any form of media from videos to blogs to soundbites or anything else in between. Contact us contact more information 🙂 #connectwithfriends #mrkh #MRKHawareness #raisingawareness #1in5000 #rokitanskysyndrome #empowerment #mrkhadvocacy #starttheconversation #mrkhsyndrome #mrkhempowerment #mrkheducation #mentalhealthawareness #mentalhealth #selfcare #support #MRKHcommunity #womenempowerwomen #diversity #fertility #infertility #fertilitymatters #ivf #adoption #childless #selfcare #selflove #bekindtoyou #youareenough #YouAreNotAlone
Next up in our team introductions is Shelley - wha Next up in our team introductions is Shelley - what led her to join the team?  Family is very important for Shelley and something she fought for. Her own challenges with fertility, caused by PCOS, led her down a route of IVF to have children. She understands how those fertility challenges can affect our mental health, emotions and wellbeing and brings with it empathy and compassion to support anyone struggling with fertility and the impact it has Day to day she is a Secondary School Art Technician, a keen photographer and a mum. She brings creativity as well as frank and honest discussion to our board. She is a confidant and advisor to her friends and family helping those who need it when they need it most. Charlie immediately thought of her as an important asset to the team.  Charlie met Shelley when they were 5. Over 30 years later Shelley has provided support since diagnosis, been a voice of reason and worked to understand more about how MRKH affects the community and all the variety it brings.  Now they have the opportunity to work together on something important to both of them. Raising awareness, improving support and ensuring no one feels alone.  #mrkh #MRKHawareness #raisingawareness #1in5000 #rokitanskysyndrome #empowerment #mrkhadvocacy #starttheconversation #mrkhsyndrome #mrkhempowerment #mrkheducation #mentalhealthawareness #mentalhealth #selfcare #support #MRKHcommunity #womenempowerwomen #diversity #fertility #infertility #fertilitymatters #ivf #adoption #childless #selfcare #selflove #bekindtoyou #youareenough #YouAreNotAlone #youareworthy
MRKH Connect and its friends 🙌 are delighted to MRKH Connect and its friends 🙌 are delighted to invite you to 'Connect with friends' a new regular online catch up for UK MRKH community, and beyond! Our first event will be a relaxed get together and chance to catch up with friends old and new at a time when connecting in person is challenging Upcoming events will be a mix of similarly relaxed chats as well as those with themes/topics, be creative or have guest speakers. These events will be every 6 weeks and open to all with MRKH. Register by following the link in our bio for our 25th October event We hope to see you there! ❤ #connectwithfriends #mrkh #MRKHawareness #raisingawareness #1in5000 #support #rokitanskysyndrome #empowerment #mrkhadvocacy #starttheconversation #mrkhsyndrome #mrkhempowerment #mrkheducation #mentalhealthawareness #mentalhealth #selfcare #support #MRKHcommunity #womenempowerwomen #diversity #fertility #infertility #fertilitymatters #ivf #adoption #childless #selfcare #selflove #bekindtoyou #youareenough #YouAreNotAlone #youareworthy
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