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mrkhconnect

MRKH Connect is a charity with a mission to connect those with MRKH all over the world. No one should feel alone, we are 1 in 5000 #mrkhempowerment ❤️
Introducing our next MRKH CONNECT LIVE 2026 speake Introducing our next MRKH CONNECT LIVE 2026 speaker, Ellamae Fullaove. This session will be co-hosted with the amazing @kaytedoestherapy on the topic: MRKH and Below the Belt Uncovered! 💜 Community, advocacy, and healing sit at the heart of Ellamae’s work. What started as anonymous posts about life with MRKH grew into @mindovermrkh , a not-for-profit organisation that creates opportunities for people to share experiences, find friendship, and feel less alone. Through community building, campaigns, innovation, creative wellbeing initiatives, and storytelling, Ellamae has helped create spaces, conversations, and opportunities that simply didn’t exist when she was first diagnosed.🙌 A storyteller, podcast host, and advocate, she aims to shake the stigma around ‘hush-hush’ health diagnoses. Driven by both community and creativity, she is always exploring new ways to support people, challenge shame, and reimagine what support can look like. She is also the Director of @rarelyproject CIC and co-founder of @vaginafest , where she works to increase visibility, spark collaboration, and champion underrepresented voices across the rare conditions and women’s health space.✨ Alongside her advocacy work, Ellamae is an artist whose work explores womanhood, messy healing, and the stories we carry in our bodies. Through both her art and advocacy, she imagines a world where community healing brings meaningful change.🩷 #mrkh #mrkhawareness #connectlive2026 #education #community
Introducing our next MRKH CONNECT LIVE 2026 speake Introducing our next MRKH CONNECT LIVE 2026 speaker, Kayte Callaghan.This session will be co-hosted with the amazing @ellamaefullalove on the topic: MRKH and Below the Belt Uncovered! 💜 Kayte Callaghan is a qualified nurse, psychosexual and relationship therapist specialising in female sexuality, pleasure, desire, intimacy, attachment, and relationship wellbeing. Drawing on many years of experience in sexual health nursing, she combines evidence-based practice with warmth, honesty, and direct communication. Kayte works with individuals and couples experiencing sexual and relationship difficulties, including sexual problems such as vaginismus, low desire, intimacy concerns, attachment difficulties, and challenges that impact sexual wellbeing, connection, and relationships. She is MRKH-aware and has experience supporting individuals with MRKH syndrome, offering compassionate care that recognises the unique physical, emotional, and relational aspects of the condition. Alongside her psychosexual therapy work, Kayte is training in Relational Life Therapy (RLT) through Terry Real’s Relational Life Institute. This approach focuses on healing relational trauma, improving self-esteem, building healthy boundaries, addressing shame, and creating more authentic and connected relationships. Kayte is passionate about helping clients identify and challenge harmful sexual scripts learned through gender, culture, family, and society. She supports people to rewrite their sexual identities as adults with greater pride, ownership, confidence, and authenticity. Kayte works with people of all genders, sexualities, and relationship structures and is LGBTQIA+ affirming and kink-friendly. To register for the event, please head to the link in our bio.👆 #mrkh #mrkhawareness #connectlive2026 #education #community
Introducing our next MRKH CONNECT LIVE 2026 speake Introducing our next MRKH CONNECT LIVE 2026 speaker, Dr Christine Pennesi .This session will focus on: What is MRKH? 💜 Christine Pennesi, MD is a Pediatric and Adolescent Gynecologist in Cincinnati, Ohio, USA. She is Director of the MRKH Care Center, a comprehensive interdisciplinary care team for individuals with MRKH founded in 2022. Dr. Pennesi advocates for a whole person approach to care and established @mrkhcarecincy to raise awareness around all aspects of care and wellbeing related to MRKH. To register for the event, please head to the link in our bio.👆 #mrkh #mrkhawareness #connectlive2026 #education
Introducing our next MRKH CONNECT LIVE 2026 speake Introducing our next MRKH CONNECT LIVE 2026 speaker, Rima Zigaitis.This session will focus on: Coping strategies and counselling. 💜 Rima Zigaitis founded @sumaavicoaching , an MRKH Coaching program, to empower people with MRKH to accept their diagnosis and transform their relationship with MRKH and other life-altering diagnoses. As a certified professional coach and adult learning specialist, she dedicates her skills to providing mental health support she wishes she had as a young girl diagnosed with MRKH at 16 years old. Coaching guides people to build tools and life strategies they can apply throughout their whole life. Coaching is offered in individual and group coaching formats for people with MRKH, parents and partners.✨ To register for the event, please head to the link in our bio.👆 #mrkh #mrkhawareness #courage #connectlive2026
🔥 Announcement Incoming 🔥 Introducing our first @ 🔥 Announcement Incoming 🔥 Introducing our first @mrkhconnect LIVE 2026 MC, Charlie Bishop, MRKH Connect: Director. This incredible woman leads with compassion, commitment, and an unstoppable desire to raise MRKH awareness both on UK soil and globally. 🌏 Charlie will be our MC for the event and will share all the exciting updates from the last 12 months about the work accomplished by MRKH Connect and the community we serve, including the ‘5000-in-50 Challenge’ donation reveal! 🫶 As a passionate leader in the MRKH world, @this_charlie_can is the advocate’s advocate. She is one very special woman. ✨ Charlie has been part of the MRKH Connect family since 2017 and took over as Director in 2019. She was diagnosed with MRKH at 17. She is a geoscientist with an analytical brain and works as a project manager interpreting satellite imagery. Her passion for a number of years has been to help support the community which has helped her, by helping others. She advocates for MRKH, support and improved research and care and started to write a public blog in 2014 which launched her outreach into advocacy more by chance and she hopes her writing, which helped her, has become a useful resource for the public and community also. We hope to see you there! 💜 To register, head to the link in our bio! #mrkh #mrkhawareness #courage #connectlive2026
Join us for our next online peer support group Con Join us for our next online peer support group Connect with Friends on Sunday 21st June 7pm BST (UK time) hosted by the lovely @ally__hensley 💜 These events are designed to be relaxed and informal with the chance to chat and share, or just listen, no pressure, with friends old and new💛 As with all our Connect with Friends this is only for those with MRKH and all MRKHers over 16 are welcome regardless of where you are in your journey. We hope to see you there 🤍 Follow the link in our bio to events to register. #connectwithfriends #mrkhawareness #mrkh #hope #mentalhealth #support #peersupport #infertility #mrkhsyndrome #mrkheducation #mrkhwarrior #mrkhempowerment #health #friendship #community #strongertogether
MRKH is hard. Hard to live with and hard to expla MRKH is hard. Hard to live with and hard to explain to others. That's one big reason why we do our #mrkh5000in50 challenge as a way to raise awareness whilst promote our physical and mental health something because MRKH may not be visible but it's impact is not. Here's Charlie @this_charlie_can sharing her challenge and why this is important to her 🙌 Our annual challenge with a big goal is to raise awareness, promote wellbeing and raise £5000 in the process. 💜 Considering donating? Follow the link below to find out more 👇 https://www.justgiving.com/campaign/mrkh-5000-in-50-2026 MRKH Connect is a small volunteer run charity with a mission to connect those with MRKH together wherever they are in the world 🌎 and provide support, resources and importantly accurate information. We rely on donations to help us continue to offer our programs initiatives and events and we thank you for considering us and liking and sharing this post. Thank you 💜 #mrkh #warrior #strongertogether infertility
🌟 REGISTRATION IS OPEN AND AGENDA IS LIVE🌟 Join 🌟 REGISTRATION IS OPEN AND AGENDA IS LIVE🌟 Join us for this year's Connect LIVE as we return to the big screen on 11th July 2026 in London. Our annual in person peer support is an event designed to provide information, support and celebrate our MRKH community, our biggest milestones in UK and global advocacy, and most importantly, you. Like last year the 5000 in 50 challenge fundraiser will also end at Connect LIVE, a wonderful way to celebrate together. Our agenda is now LIVE and we will be joined by speakers from across our community in the UK and North America sharing their experiences and knowledge as we also explore experiences at different ages and stages of our journey too as we cover everything from diagnosis, to body image, cultural perspectives, to fertility pathways (or not), mental health and more. We are also absolutely delighted to welcome a special guest speaker Dr Christine Pennesi from the @mrkhcarecincy team joining us live and in person to answer the question...What is MRKH? Follow the link in our bio to find out more and sign up today and keep following for speaker updates! Tickets are FREE but if you wish to make a donation all proceeds will go straight back into the work we do supporting the MRKH community. https://mrkhconnect.co.uk/connect-live-11th-july-2026/ 💜 #mrkh #infertility #event #warrior #mrkhwarrior
Always keep going. ✨💜 #mrkh Always keep going. ✨💜 #mrkh
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