MRKH Connect, the charity that provides a protected forum for everyone with Mayer-Rokitansky-Küster-Hauser (MRKH) Syndrome to learn, make connections and lifelong friends, has rebranded and launched a new website.
The new site will allow everyone to learn more about this congenital condition which affects approximately one in five thousand woman and for members to freely discuss their experience, thoughts and feelings within a secure and supportive environment.
Much of the information on MRKH Connect (https://www.mrkhconnect.org) is available to everyone who visits whilst approved members will have access to the Forums, the Members’ Map and be able to create their own circle of friends.
The unique MRKH Connect Members’ Map will allow everyone to anonymously search for new friends and contacts, either in their local area or on the other side of the world!
MRKH is a disorder of reproductive development leading to the absence of the uterus, cervix, and the shortening of the vagina.
The presence of ovaries produces female hormones that lead to breasts and pubic hair developing. However, the absence of the uterus means that periods don’t start, which is usually the first sign investigated by a local doctor or physician.
New Director of MRKH Connect, Charlie Bishop explains more about why the charity has rebranded and what the new website will mean to the community: “MRKH Connect was set up with a community in mind. From an individual that feels alone and isolated, not knowing where to turn, to a group with a voice that wants to raise awareness for the condition we all share for themselves, the community and for the public.”
“Since the charity launched, how we interact and use information has changed dramatically. As the way we connect with others has changed, and our desire to access more information grew, it was a great opportunity to review, rebrand and relaunch a site dedicated to connecting those with MRKH together. We wanted to ensure the site remains relevant for everyone, regardless of where they are in their MRKH journey.”
“I am so proud of what we have already achieved in re-engaging with the MRKH community and supporting advocacy for MRKH over the last few months. The launch of our new website is the cherry on top, the platform on which those with MRKH can connect safely and securely on one side whilst on the other, a chance to grow the public, as well and Member only resources, helping us shine a light on MRKH and build on the great foundations laid by the charity’s founders Kelly and Janet.”
“Our mission remains the same to ensure no one feels alone whilst recognising that there is strength in the wider MRKH community and working with our peers on collaborative events as we all continue to raise awareness, improve access to support whilst providing relevant resources for all. This remains a community initiative and we are here for everyone.”
Visit www.mrkhconnect.org to learn more.