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facharlieabishop2025-08-24T09:56:46+00:00

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Recent Posts

  • NFAW: My fertility funding journey (by Charlie)
  • NFAW: My egg retrieval journey (by Vics)
  • NFAW: My fertility journey (by Claire)
  • NFAW: My journey so far (by Mollie)
  • National Fertility Awareness Week

mrkhconnect

MRKH Connect is a charity with a mission to connect those with MRKH all over the world. No one should feel alone, we are 1 in 5000 #mrkhempowerment ❤️

Five months ago, we asked our community to write f Five months ago, we asked our community to write for us and share a submission based on the theme: A day in my life as a person with MRKH. ❤️

We are super excited to share our fifth submission: a deeply personal and uplifting essay about the union between an MRKH diagnosis and the body we learn to accept, honour, and love. ✍️

An essay by Kamile Grigonyte, titled: The Prison I Built, and the Soul That Chose It!   🩷

“I dealt my own cards. My soul knew what this life would ask of me, and it said yes. And if I chose this body, how can I keep hating it? What a waste of life and energy, to spend each day working against yourself while trying to grow. So, I am learning to offer this body pure love instead, and to receive this human experience with everything it brings.
 
We do not grow in the easy seasons. We grow in the hard ones. MRKH, once my secret and my shame, has become my teacher. It is teaching me about love, acceptance, perseverance, and the beauty of life.”

Thank you so much,  @flow.by.kami for sharing such a powerful, honest, and courageous piece of writing. You are an inspiration to so many. ✨

#mrkh
✨️ JOIN THE CONVERSATION ✨️ Earlier this year we ✨️ JOIN THE CONVERSATION ✨️

Earlier this year we shared this collaborative research opportunity from Samantha Stephen who is a social scientist and an MRKHer herself, studying her PhD on the social response in the UK to emerging reproductive technologies.

The first interviews are now complete but Sam would love the chance to chat to more of the community and especially from our older MRKHers. 

This truly is community informed research where the community voices are critical to the outcome yet its those voices are often marginalised in such discussions making these studies uninformed and incomplete. 

Whether you are not sure if this is for you, never heard of it (but curious) or very interested to learn more, all perspectives are valid. 

Research is open to all MRKHers in the UK and will be in the form of a 1-2-1 online interview with Sam.

All outcomes are anonymised. This research has been granted the appropriate ethical approval.

If you are interested to learn more then please email Sam directly where she will share more information, no pressure to pursue if you decide it's not for you after all.  also check out the link below 👇
samantha.stephen@kcl.ac.uk

💜

https://mrkhconnect.co.uk/research-on-artificial-wombs-and-mrkh/

#mrkh #research #strongertogether #raisingawareness#warrior #mrkhempowerment #mrkheducation #infertility #journey #community #peersupport
Join us for our next online peer support group Con Join us for our next online peer support group Connect with Friends on Sunday 15th November 7pm GMT (UK time)

These events are designed to be relaxed and informal with the chance to chat and share, or just listen, no pressure, with friends old and new💛

As with all our Connect with Friends this is only for those with MRKH and all MRKHers over 16 are welcome regardless of where you are in your journey.

We hope to see you there 🤍

Follow the link to register (also in bio)
https://mrkhconnect.co.uk/connect-with-friends-15th-nov-2026/

#journey #mrkhawareness #mrkh #hope #mentalhealth
Whilst NFAW technically ended yesterday, we had on Whilst NFAW technically ended yesterday, we had one more story to share. 

Fertility is hard but feeling let down by a public healthcare system designed for all, where guidelines are in place but rarely consistently adhered to is why we will always continue to fight. 

So today's #FertilityUnfiltered experience and our last of the week comes from our Director Charlie. Her fertility journey ended over 10 years ago but what's changed? Sadly, not much. 

This is why we fight. 

🩷🧡

If you are reading this and think, I also have MRKH please know that we are here. We are here for the bad as much as the good and provide peer support for MRKH Syndrome whatever age and whatever stage of your journey.

You are not alone

💜

Find out more about NFAW - @fertility.action @nationalfertilityawarenessweek 
#MRKH #NFAW2026 #journey #support
For those of us with MRKH navigating a fertility j For those of us with MRKH navigating a fertility journey is more complex.  Our anatomy is different, we can't carry a pregnancy owing to Absolute Uterine Factor Infertility (AUFI) so whilst IVF medications etc are no different, and the principle approach the same, we are hit with more complexities. 

Our access to funding for fertility treatment (even for fertility preservation), as we would eventually require a surrogate, is even more limited than those who don't require a surrogate, then we also have the more practical difficulty of finding out how to monitor our cycles and what is our "normal" when we don't get a period. 

So today's #FertilityUnfiltered experience comes from the lovely Vics and her journey with egg retrieval.  This open and honest piece shares her perspective of a process that is less often talked about in our community and explores why she has no regrets despite not yet being in a position to have a child at this moment in time.

🩷🧡

If you are reading this and think, I also have MRKH and this is exactly how I feel/have felt or you want to learn more about fertility pathways with MRKH, then please know, we are here. We are here for the bad as much as the good and provide peer support for MRKH Syndrome whatever age and whatever stage of your journey.

You are not alone

💜

Find out more about NFAW - @fertility.action
#MRKH #NFAW2026 #journey #support #peersupport #community #mrkheducation #mrkhempowerment #fertility
Last night, @this_charlie_can and @ally__hensley a Last night, @this_charlie_can and @ally__hensley attended the Parliamentary Reception hosted by Kate Osborne MP, Chair of the All-Party Parliamentary Group for Fertility, in London.

This event brought together Parliamentarians, healthcare leaders, clinicians, patient representatives, charities and organisations from across the fertility and reproductive health sector.

Spearheaded by the incredible team at @fertility.action leading National Fertility Awareness Week (NFAW) in the UK, it was an honour to be among so many passionate voices determined to change the fertility landscape.

As an MRKH charity, having a ‘seat at the table’ to further our goal of increasing support and awareness was an absolute privilege.

This week is a poignant milestone to shine a light on fertility, different pathways, different diagnoses, and the challenges, achievements, and work still to be done.

Thank you to all those involved for making this evening so special and informative.💜

#NFAW2026 #mrkh #infertility #infertilityawareness
Fertility journeys are hard and they don't always Fertility journeys are hard and they don't always end the way we want for many reasons. 

This week is all about sharing unfiltered stories and experiences.  Because being honest about the reality, the good and the bad can be a toolkit for someone else navigating their path, it can also be a way to know that you are not alone in what can feel like a terribly lonely journey at times. 

But most of all stories provide hope.  Hope for maybe all you ever wanted as much as hope for a new path maybe not yet visible that can bring the same joy in a different way. 

A big thank you to Claire for sharing her #FertilityUnfiltered experience of where her path led her, the ups and downs but, importantly, what MRKH has brought her despite her fertility path not ending where she originally expected. 

🩷🧡

If you are reading this and think, I also have MRKH and this is exactly how I feel/have felt, then please know we are here. We are here for the bad as much as the good and provide peer support for MRKH Syndrome whatever age and whatever stage of your journey.

You are not alone

💜

Find out more about NFAW - @fertility.action
#MRKH #NFAW2026 #journey #support #peersupport #community #mrkheducation #mrkhempowerment #fertility
Imagine being faced with infertility as a teenager Imagine being faced with infertility as a teenager.  This is the reality for most diagnosed with MRKH where a diagnosis often comes between age 15-17. 

As we kick off NFAW and think about #FertilityPathways we wanted to take it back to basics, back to that initial diagnosis, whenever that was. 

That change in perspective when we are hit with something so unexpected that changes the way we think about not only our future but also ourselves and what fertility, and womanhood in this case, means for us. 

A big thank you to Mollie, for sharing her #FertilityUnfiltered experience of how an MRKH diagnosis has affected her and the challenges with navigating this in the early years. 

🩷🧡

If you are reading this and think,  I also have MRKH and this is exactly how I feel/have felt, then please know we are here. We are here for the bad as much as the good and provide peer support for MRKH Syndrome whatever age and whatever stage of your journey. 

You are not alone

💜

Find out more about NFAW - @fertility.action 
#MRKH #NFAW2026 #journey #support #peersupport #community #mrkheducation #mrkhempowerment #fertility
This week is National Fertility Awareness Week (NF This week is National Fertility Awareness Week (NFAW) in the UK led by @fertility.action.

A week to shine a light on fertility, different pathways, different diagnoses as well as the challenges, the achievements and the work still to be done.

By sharing real stories and experiences under the theme #FertilityUnfiltered we can explore the reality; the good, the bad and the ugly.

In the words of @fertility.action "It’s time to break the silence, bust myths and make space for more honest, open conversations"

🧡🩷

Join us this week as we share personal accounts as well as information about MRKH, what fertility means for you, your pathways and your journeys and how those happy endings may look different to how you imagined but can be no less joyful. 

📣 Find out more and get involved: fertilityaction.org/NFAW

#NFAW2026 #infertility #FertilityAwareness #MRKH
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