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charitable travelcharlieabishop2023-06-25T12:47:41+00:00

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mrkhconnect

MRKH Connect is a charity with a mission to connect those with MRKH all over the world. No one should feel alone, we are 1 in 5000 #mrkhempowerment โค๏ธ

But what if? ๐Ÿ’œ #mrkh #warrior #infertility #mrkhe But what if? ๐Ÿ’œ

#mrkh #warrior #infertility #mrkhempowerment #hope
๐ŸŽจ @reviveyourroar
Our mental health is more important than our physi Our mental health is more important than our physical health but sometimes the hardest thing to know we need support with, or where to find it. 

This World Mental Health day we reflect on the critical value of mental health support and finding the right support for us. 

This year's theme - "Lived experiences heard: real voices, real change" 

Something that relates strongly to our community, how our shared experiences can help others and make us feel less alone. 

If you need support we encourage you to check out  these great pages - @mentalhealthfoundation, @samaritanscharity, @mindcharity and know that we are always here for peer support and virtual hugs. 

๐Ÿ’š

#worldmentalhealthday #mentalhealth #support #mrkh #journey #mrkheducation #infertility #mrkhempowerment #community #peersupport
We love hearing from you and we want to thank the We love hearing from you and we want to thank the lovely Mariah for sharing some of her amazing multimedia work with us.  Inspired by her journey with MRKH and her interests in the mythical and fantastical the relationship between human and nature around us is explored. 

Her post, in full under blogs (link in bio), shares links to her Patreon and Spotify where you can explore her music, her journey and more. 

We look forward to more collaborations together going forward. 

๐Ÿ’œ

--
As always if you have something you would like to share our submissions are ALWAYS open, you can share audio, visual or written pieces on any topics related to MRKH and your experiences. Pieces can also be anonymous and we are very happy to work with you to help you find the right way to share your story.  Just pop us a DM or follow the link in our bio to contact us. 

#mrkhawareness #mrkh #hope #mentalhealth #support #music
#peersupport #infertility #mrkhsyndrome #mrkheducation #mrkhwarrior #mrkhempowerment #health #friendship #community #strongertogether
Please play this message every single day. ๐Ÿ’œ #MRK Please play this message every single day. ๐Ÿ’œ

#MRKH
Join us for our next online peer support group Con Join us for our next online peer support group Connect with Friends on Sunday 18th October 7pm BST (UK time)

These events are designed to be relaxed and informal with the chance to chat and share, or just listen, no pressure, with friends old and new๐Ÿ’›

As with all our Connect with Friends this is only for those with MRKH and all MRKHers over 16 are welcome regardless of where you are in your journey.

We hope to see you there ๐Ÿค

Follow the link in our bio to events to register.

#journey #mrkhawareness #mrkh #hope #mentalhealth
Sometimes we don't always feel supported. The fe Sometimes we don't always feel supported. 

The feeling that everything might collapse underneath us at a moments notice just like a chair with only three legs. 

But even when it doesn't seem like it is there we can always lean into the safety of peer support.  Or that simple DM of "Hi, can you help" and know that we are here. 

it may seem corny, or perhaps cringey, but it's true.  We aren't here to overcomplicate.  We are here to help you find connection, resources and support to help you on your journey. 

There is always a seat here with us.

๐Ÿ’œ

#mrkh #warrior #hope #mrkhempowerment #infertility #journey #mrkheducation #mentalhealth
Sunday reminders to protect your peace. ๐Ÿ’œ๐Ÿ’œ ๐ŸŽจ@all Sunday reminders to protect your peace.

๐Ÿ’œ๐Ÿ’œ

๐ŸŽจ@alltoowriting 

#mrkh #warrior #hope #journey #mrkheducation
I'M OK is a project encouraging individuals to tal I'M OK is a project encouraging individuals to talk about their emotional wellbeing and mental health experiences in their own words whilst telling their story through their portraits. This project has never before focused on just one condition and this is why this collaboration is so special.

We all know that mental health impact is often under represented and supported so this project refocuses our attention on the impact MRKH has on our mental health and emotional wellbeing in our own words unfiltered, unscripted, unreleased.

Whether you are living with MRKH or supporting someone with MRKH and wherever you are in the ๐ŸŒŽ, we invite you to share with us only if you feel comfortable to do so. 

There are so many ways to approach your submission, just like Metaxia's more grpahical interpretation and poem, reaffirming there is no right or wrong way to share your picture or story. 

 ๐Ÿ’œ

Check out the full gallery linked in our Bio.

We would love to share yours ๐Ÿ’œ

#mrkh #warrior #mentalhealth #mrkhempowerment #hope
โœจHow were you diagnosed with MRKH?โœจ We want to he โœจHow were you diagnosed with MRKH?โœจ

We want to hear your experience.๐Ÿ™Œ

MRKH diagnosis can look very different depending on when you were diagnosed, where you were diagnosed, and what imaging or procedures were available at the time.

So, weโ€™re asking the MRKH community: What actually led to your diagnosis?

โ“ An ultrasound
โ“ An MRI
โ“ A laparoscopy
โ“A combination of investigations
โ“ A physical examination
โ“Blood tests or genetic testingโ€ฆ or something completely different?

And hereโ€™s the bit weโ€™re really interested in:

What year were you diagnosed? ๐Ÿ“†

Weโ€™re hoping to look at whether diagnostic experiences and procedures have changed over time โ€“ from those diagnosed decades ago to those receiving a diagnosis more recently.

There is no โ€œrightโ€ answer. Every experience matters.

๐Ÿ‘‡ Tell us in the comments and help us build a picture of the MRKH diagnostic journey across generations.

Your experience could help someone else feel less alone โ€“ and help us understand where things have changed, and where there may still be gaps.โค๏ธ

๐Ÿ“ธ Photo credit @mollymarymcglynn 

#MRKH #MRKHCommunity #MRKHDiagnosis #mullerianagenesis
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