We all know how important access to support following diagnosis of MRKH is but we also know there can be challenges with access. To help us work to improve this we would like to understand your experiences of accessing professional and peer support services of MRKH.
As part of this we have been delighted to work with MSc student Ruveyda Aki from King’s College London who has joined us on a short placement since January 2021 exploring this specific topic as part of her research.
“Hello, my name is Ruveyda Aki I am a MSc Health Psychology student at King’s College London. As a part of my placement this year I am working with MRKH Connect to understand the barriers to accessing peer and professional MRKH care and support in the UK. I was inspired to apply for this role as I wanted to make a change in people’s lives by developing techniques to help those who require it and help make their lives easier by improving the flaws in the healthcare system.”
You are invited to participate in our survey where you will be asked questions regarding your journey in accessing care and support as an individual with MRKH. The survey will take approximately 10 minutes to complete and is open to all those with MRKH who were diagnosed or who have accessed MRKH support services within the UK only.
Your participation in this study is completely voluntary and if you feel uncomfortable answering any questions, you can withdraw from the survey at any point. It is very important for us to learn your experience and opinions to help us understand how primary care and support can be improved.
Your survey responses will be strictly anonymous, and all data will be collected and stored confidentially. If you have any questions at any point, you may email Ruveyda directly at firstname.lastname@example.org or contact the MRKH Connect team using our contact form.
Thank you very much for your time and support.
Survey closes: 3rd May 2021