Are you a parent of someone with MRKH?  Would you like to help with MRKH research?

Researchers at King’s College London want to hear from you!

King’s College are carrying out research to help us learn more about your experiences of MRKH, and to understand parents’ experiences and understanding of MRKH.  King’s Collect would like to learn about your experiences of coping, accessing support, and communicating about MRKH. In doing so it is hoped that it will be possible to develop better ways to support people with MRKH and parents in the future a topic of great interest to MRKH Connect also.

Who can take part?

Any parent of a person who has MRKH syndrome can participate. However, most participants to date have been mothers from white ethnic backgrounds. In the interest of being representative King’s College are looking to ensure a representation of experiences of parents across the community, are particularly interested in interviewing Dads and people from a range of ethnic backgrounds.

What will happen if I take part?

You will be asked to complete an online interview via Microsoft Teams with one of our researchers. This will take about 30-45 minutes.


Click this link to take you to the information sheet which tells you more about the research, consent form and the researcher will then send you a link to the survey.  Hurry, deadline to register your interest is before the end of January!

If you have any questions, please contact the primary researcher, Emily Salisbury


Supervisor: Dr Susan Carroll (

Please note this is not an MRKH Connect led study but we believe it to be of interest to the community and already work closely with King’s College and are pleased to share this given the importance of the topic and how it aligns with our own charity goals! 🤍