MRKH Connect is pleased to share the following open survey for those with DSDs (also known as VSCs), advocates, allies and healthcare professionals with the aim of improving care across the board.  This research is not affiliated with MRKH Connect directly but we always welcome new research that may be of interest to our community and that can raise awareness of different VSCs (Variations of Sex Development) with an aim to improve care.  Any questions about the study can be directed to the researchers.

Please note the survey is for over 18s within the European geographical area.

Dear Colleagues,  

We are writing to ask for your insights and input.

We are conducting an anonymous European-wide survey aimed at improving healthcare to people who have variations of sex characteristics (also known as DSD in medical settings, or intersex people in other settings). If you are a healthcare professional, or someone who provides peer support to this population, then we would be very grateful if you can fill in the survey. Peer support is when people use their own experiences to help each other.

The survey will take 10-20 minutes and is available here: .

Mobile version available. Link is not personal, could be shared, as well as QR code

Qr code Description automatically generatedIt covers issues such as the provision of psychosocial support, access to peer support, and barriers to healthcare. The results will be used for academic papers, briefs for policy makers, workshops and other outputs that aim to improve care for this group of people.

The survey will run until 30 October 2022.  We thank you again in advance for your participation and we also ask if you can kindly circulate this message to colleagues. 

Thank you very much for your time!

The study is funded by a Marie Skłodowska-Curie European Commission grant (INIA programme, agreement No. 859869) and it has passed ethics approval at the University of Zurich, which leads this project. This survey reflects only the authors’ views and the Agency is not responsible for any use that may be made of the information it contains.


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