I was 16 and my sister was 18 but neither of us had started menstruating, my mum was concerned and decided to take us to the hospital. When we got there the doctor found out that neither of us had a cervix but he couldn’t diagnose it cause he didn’t know what it was. I can’t forget that day my mum cried.

My mum is more of a religious person, we went to different churches trying to pray out the demons and evil. I wasn’t bothered because I had a mentality that “I am God’s most beautiful creation” and I didn’t really know what it meant.

I started asking questions online trying to get a name of my condition. Finally I found name.

My condition has been kept a secret from my friends and family. I am a Nigerian and in this part of the world people lack orientation on matters like this. I was diagnosed properly at 23. My relationship and mental health has been affected a lot by MRKH. I had problems opening up about it to people because I haven’t seen anyone with the same issue asides my sister and we were made to think it was a spiritual attack. I’ve had issues with having a relationship with the opposite sex because I know they will ask for sex and probably want to have children, which I can’t offer. So I have always been on my own either crying myself to sleep or doing activities to get my mind off it.

I am 26 now and I have not started dilation because it’s hard getting a dilator here and fear of pain. All I do is dilating with my finger or a bullet sex toy I got to test my depth and width. Dilation is on my wishlist for the new year and getting a better dilator shipped into Nigeria is a part of my budget for the new year. Step by step.

I started MRKH_NIGERIA_ in October 2021 few days after my birthday to create awareness and also educate others about MRKH in any way possible.

I know it’s going to be a tough journey with bumpy roads but I hope to get the message out there. MRKH is not a death sentence and it’s not the end of the world. I want to reach out to people with MRKH in Nigeria, to get diagnosed properly, see a therapist if needed and also give out dilators to those who can’t afford them. Helping others is what I have decided to do because it wasn’t easy for me and my worst time was when I didn’t know what was wrong with me.

I have been overwhelmed by the love and support I have been getting from other warriors. It’s amazing what you guys do and I’m grateful for the platform. It’s a wonderful feeling getting to meet people and knowing you are not alone in the battle.

Kudos to the organisations and other warriors

Indeed we are warriors.
We are stronger than we imagine
We are beautifully designed
We are 1 in 5000
I am 1 in 5000

Elizabeth x