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charlieabishop2026-06-06T17:37:18+00:000 Comments

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CONTACT MRKH CONNECT

Recent Posts

  • WCPAG: What did we learn?
  • New Research: Cross cultural perceptions of UTx among the MRKH community and clinicians
  • Research on Artificial Wombs and MRKH
  • New Research: Centre of Bioethics and Health Policy
  • When your body doesn’t match the curriculum

mrkhconnect

MRKH Connect is a charity with a mission to connect those with MRKH all over the world. No one should feel alone, we are 1 in 5000 #mrkhempowerment ❤️
In April, Charlie as Director of MRKH Connect atte In April, Charlie as Director of MRKH Connect attended WCPAG (World Congress of Pediatric and Adoslecent Gynaecology) an event held approx every 3 years. Charlie shares her reflections from the event ---> This event, designed for medical professionals to come together, was also an opportunity for us as MRKH patient advocates to have a presence and to be be able to not only to connect, chat and learn but also contribute to the discussions. Very much leaving us all with the feeling that our presence was not just valued but important. Find the full article under News in our Bio. 💜 Big thanks to fellow advocates at the event Rima (@sumaavicoaching), Ashley (@mrkhcanada) and Adair (@beautifulyoumrkh) a pleasure to meet in person and experience this together. #mrkh #mrkhawareness #infertility #mrkhempowerment #mrkheducation
As we hit Day 15 of our MRKH 5000 and 50 challenge As we hit Day 15 of our MRKH 5000 and 50 challenge its amazing to hear from our participants and what they are up to. Here's Aysha @mrkhmary sharing her challenge and why this is important to her 🙌 Our annual challenge with a big goal is to raise awareness, promote wellbeing and raise £5000 in the process. 💜 We are a community that is stronger together. Whether you are public with your MRKH or not, whether you have MRKH or not, this challenge is for all. Considering donating? Follow the link below to find out more 👇 https://www.justgiving.com/campaign/mrkh-5000-in-50-2026 MRKH Connect is a small volunteer run charity with a mission to connect those with MRKH together wherever they are in the world 🌎 and provide support, resources and importantly accurate information. We rely on donations to help us continue to offer our programs initiatives and events and we thank you for considering us and liking and sharing this post. Thank you 💜 #mrkh #raisingawareness #warrior #strongertogether #infertility
We’d love for you to answer this question and demy We’d love for you to answer this question and demystify MRKH! 🙌🙌🙌💜 *Sidenote: Perfect for a journal entry prompt! “What is a myth about MRKH that I want to completely unlearn today?” ✨ Is it about womanhood? ✨ Is it about parenthood? ✨ Is it about sex and relationships? ✨ Is it about mental health? ✨ Is it about ovulation? What assumptions are made about MRKH that are completely out of whack? We’d love to know! Read our comment below to start the debunking chat. 👇👇👇 #MRKH
✨️UPDATED DATES ✨️ If you have ever wanted to con ✨️UPDATED DATES ✨️ If you have ever wanted to connect with others and find a path forward, and have been unsure where to start then the MRKH Youth Program might be for you! A program that may surprise you and a perfect and relaxed way to meet others in a small group setting, online. This program is... 🤍Peer led and run online. 🤍Small group, relaxed and informal, 🤍Designed to help young MRKHers move towards a better acceptance of MRKH 🤍A way to develop strategies to help process your journey 🤍Focused on wellbeing whilst making new connections in a safe space. Run by young MRKHers for young MRKHers aged 18-25* 🤍 Our next program will start on 17th June and runs every Wednesday evening for 6 weeks. Find out more by following the link below, in our bio or drop us a 💜 below! https://mrkhconnect.co.uk/youth-program-2026-from-17th-june/ #mrkh #hope #journey #community #support #friendship #mrkhempowerment #mrkheducation #peersupport #warrior #infertility #strongertogether
Sit with it. 💜 #mrkh Sit with it. 💜 #mrkh
✨️ NEW RESEARCH ✨️ We are very excited to share t ✨️ NEW RESEARCH ✨️ We are very excited to share this new research from Samantha Stephen who is a social scientist and an MRKHer herself, studying her PhD on the social response in the UK to emerging reproductive technologies such as artificial wombs. Through a focus group facilitated by MRKH Connect we worked together to revise and discuss the interview questions and share perspectives from different stages, ages and cultures from our community. This truly is community informed research where the community voices are critical to the outcome yet are often marginalised in such discussions. Favoured far below policy makers but without taking into account the view of those that such new innovations may support. Discussions matter. Whether you are not sure if this is for you, never heard of it (but curious) or very interested to learn more, all perspectives are valid. Research will be in the form on one to one online interviews with anyone in the UK with MRKH. All outcomes will be anonymised. This research has been granted the appropriate ethical approval. If you are interested to learn more then please email Sam directly where she will share more information also check out the link below 👇 samantha.stephen@kcl.ac.uk 💜 https://mrkhconnect.co.uk/research-on-artificial-wombs-and-mrkh/ #mrkh #research #strongertogether #raisingawareness#warrior #mrkhempowerment #mrkheducation #infertility #journey #community #peersupport
Join us for our next online peer support group Con Join us for our next online peer support group Connect with Friends on Sunday 21st June 7pm BST (UK time) These events are designed to be relaxed and informal with the chance to chat and share, or just listen, no pressure, with friends old and new💛 As with all our Connect with Friends this is only for those with MRKH and all MRKHers over 16 are welcome regardless of where you are in your journey. We hope to see you there 🤍 Follow the link in our bio to events to register. #connectwithfriends #mrkhawareness #mrkh #hope #mentalhealth #support #peersupport #infertility #mrkhsyndrome #mrkheducation #mrkhwarrior #mrkhempowerment #health #friendship #community #strongertogether
✨️New Research Opportunity✨️ Rosa Toriello an MRe ✨️New Research Opportunity✨️ Rosa Toriello an MRes Medical Anthropology student of UCL, London has focused her research project on perspectives from the MRKH community after being inspired by the stories shared around the media attention on this topic despite having not heard of MRKH before that point. This sparked her interest to gather those perspectives to help inform future policy and support. As an Italian herself she was particularly interested in the cross cultural perspectives between Italy and the UK for uterus transplant as a possible path to parenthood. Bearing in mind other routes for those with MRKH to have a child biologically, such as through surrogacy, are illegal in Italy, but not in the UK. Participants must be over 16 and reside in UK or Italy. Choosing to participate is completely voluntary and should be done after reviewing all the associated information provided by the researcher. What does participation look like? The participation will focus on a conversational 45min interview designed to gather different personal perspectives on UTx which will be anonymised for collation into the research. Whether you are interested in UTx or not, your thoughts and perspectives are still very much valid and we encourage anyone who might be interested to have a say on this topic to contact Rosa to discuss further. Rosa Toriello - yjmsrto@ucl.ac.uk We believe in the value of research to better understand, inform and improve services/offerings available to our community and beyond which is where we believe research topics like this may be of interest. https://mrkhconnect.co.uk/new-research-cross-cultural-perceptions-of-utx-among-the-mrkh-community-and-clinicians/ #research #mrkh #infertility #health #support #journey #mrkheducation #mrkhempowerment #community #pathtoparenthood #uterustransplant #wombtransplant
Whether you have been following us for long or onl Whether you have been following us for long or only recently, you have probably seen us share #mrkh5000in50, but what is it? Well, it's idea born out of COVID that sparked something special. A challenge to bring people together, do something meaningful and raise vital funds. 50 days of motivation, connection and support. 50 days of inspiring each other and the community by doing something that also helps everyone who takes part focus on physical and mental health and well being and collectively raise awareness for MRKH. Our goal is big...to collectively raise £5000. Allowing us to continue to offer free services through Connect to anyone affected by MRKH and offset travel to allow for anyone with MRKH to travel to a local event in the UK. We are 1 in 5000 yet so often led to believe we are the only ones. Thank you for helping us continue to shout louder https://www.justgiving.com/campaign/mrkh-5000-in-50-2026 💜 #mrkh #infertility #mrkheducation #mrkhempowerment
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