Access to fertility funding for fertility preservation or as part of IVF journeys is limited and unequally distributed – this has been the case for a long time.  However, if the final outcome is surrogacy, like for those of us who have MRKH syndrome, then that access is often even more limited and often those wishing to pursue this journey have to self fund.  The impact of this is not just financial but also psychological.  It has a toll on us that is not well represented and understood.

This research is designed to address this.

Led by researcher and trainee Clinical Psychologist Sara Gilmer her research project focuses on Exploring the psychological impact of accessing fertility treatments via the NHS for individuals with Mayer-Rokitansky-Küster-Hauser (MRKH) Syndrome.  A topic that we believe is extremely important not just for those with MRKH but for anyone facing similar challenges.

So often the psychological impact of a diagnosis, or a decision, is sidelined versus the physical impact yet our mental health is critical to our wellbeing.

Through our partnership with Sara, who joins us on a placement for 6 months to explore this topic, and our collaboration on the #FightForSurrogacy campaign we want to make a change.

If you have MRKH and meet the criteria below and are willing to share your experience please do follow the link to find out more.

●  between 18 and 45 years old
●  Registered with a fertility clinic in the UK (this can be a past experience as well as a current one)
●  Must have met with fertility specialist in the UK
●  Willing to provide informed consent
●  Able to speak English sufficiently to understand consent and partake in interview
●  Registered with a GP